Reducing pain medication

Hi Carrsn. Yes it’s normal everythjng takes time I note from your earlier post you’re only 3 month into recovery. It’s early days yet. Just mention everything at your next hopefully face to face meeting. I can still get the odd ache  if I stretch my tongue too far snd I’m 3 years plus.  Are you still doing your swallow snd mouth exercises? If not it does help.

Hazel 

Hi Carran

I do have some discomfort still in my tongue and throat and I completed treatment in August 2018.  All examinations look clear.  Do mention it to your team when you next speak/see them so they can have a good look and hopefully reassure you.

Linda x

Hi Hazel.  Thank you.   I have my scan tomorrow and follow up appointment in January. Yes I do my head and neck exercises daily and massaging the  Lymphedema.  Eating the softest of foods (yogurt, porridge, egg) not but nothing significant yet.  Take Care

Thank you Linda.

Hi Carran. Well done on getting rid of the opiates. I’ll just add to everybody’s excellent reassurance. Those swallow and trismus exercises…. They are for life. Nearly three years in I do mine twice a day. 

Hi You will be fine I had my pet  ct scan 4 Jan 2019 results 10 days later 4 days after flew to Spain for 3 weeks. 
Just trust  the treatment has an excellent rate of cure I  managed ged a small plate if Christmas dinner that first year. 
well messed around with it in my plate but st least was able to enjoy the day

Hazel x 

Thank you Dani and take care

Thank you

Yes. That’s what I did Carran. I was happy to put up with a little background pain rather than keep stuffing myself full of analgesics 24/7.  After a while the pain lessened to the point where I came off painkillers altogether, even though I wasn’t totally pain free for some time. Sometimes progress seems oh so slow! Patience is the watchword. 

Thank you.  My computer has died hence delayed response.