Partner and Cancer of the voicebox

Hello Amanda, this sounds shocking as there is no excuse for the way he is being ignored , in all honesty your husbands consultant should be looking after him not the G.P. Another annoying point is that he should have had the PEG feeding tube fitted before treatment started and not once the horse has bolted . Please do not hesitate in contacting his consultant or one of his team so they can see him A.S.A.P one because of his weight and more concerning the new lump that has appeared, he should not have to go through you GP he should be seen A.S.A.P  by the team , so please phone right away and tell them how upset you are with the way he and yourself have been treated and you want him seen straight away . Sorry im being a bit blunt but it just annoys me when i hear these stories . I wish you both the best of luck ,please let us know how you get on , take care . 

                                                                                          Chris xx

I know it will all be blamed on Covid and all involved will get away with that. Back in late January whilst he was having treatment my daughter rang to say he wasn't eating and we were all worried and the response was an adult and could make his own decisions ... this at this point is further loss of faith even though we were told his cancer was curable 

Of course they will try and blame Covid Amanda , but its so wrong to do so, most of these consultants can diagnose a problem over the phone as they are so experienced in this field, im more concerned about the new lump as i had cancer come back three times. Most head and neck cancers are curable with very good success results but like me it can come back so please dont take any chances as the sooner its looked at the better the results will be. Thanks for replying , i would be fuming if this was me. Hope you manage to get some answers tomorrow if you contact them, take care. I had my voicebox removed so this is why im maybe a bit cautious over this subject .

                                                                                 Chris xx

This of course is terrible, I had the same treatment and can only praise my doctors. I would seriously suggest you try another doctor even if it cost you money. I would suggest you my doctor and guarantee that he would do everything possible for you but I cant do that on here. Why was the peg unsuccessful it seems quite a simple thing to do. I am not sure where the opposite of the voicebox is which I gather was removed like mine was. If it wasnt maybe it should have been. Cancer should not return after radiation. As I have just written elsewhere you should always have the email of your doctors to be able always to 'talk' to them. Most are just their full name with the hospital added on. 

Thank you Chris and he is back at the consultant next Tuesday but we had to go to the GP for the referral, what I am getting at is that we should have had more contact and that we should not be having to run around and fight for him to be seen. The lump is just above his collar bone on the opposite side of the cancer. They wanted to try and get rid of it with Chemo and Radio without removing his voice box. We were just told he had curable cancer but a copy of the letter that was sent to the GP came here too and it said T3 NX SCC and I had to google it.

Crazy that you had to go back to your GP Amanda, once you've been treated for this type of cancer you (he) should be be seen regularly by the MDT for six years before all clear is given. I could (still can) see a specialist nurse, dietician or speech and language therapist virtually on demand, really something very wrong here. I went through my second treatment last year (so during Covid) and they were every bit as available as they were in 2013/14, so that's no excuse at all. I'm furious for you.

Hi Amanda

Like the others I am shocked at the shoddy after care your husband appears to have received.  He should be able to get an appt with the hospital team immediately when any concerns arise.

I hope all goes well on Tuesday. 

Linda x

I can only say how sorry i am that your husband has been treated like this, you are so right you should not be running around it should all be automatic, lets hope they can also get the communication problem sorted out as well as the lump issue. You should mention to his consultant about the lack of communication, good luck with the appointment on Tuesday. Take care .

                                                                                  Chris x

I have so much to say to them as the care and support all of have received is poor. The Dietician rang today after waiting 4 weeks nearly and only had got the message yesterday from the nurse specialist. he started to say he wanted my partner to be weaned off the ensures by next month, Oh and can I add that no weight has been taken so he could have lost further amounts of weight. My partner mentioned to him about the lump and he just said oh dear, worth getting it checked out. I am sure they should have given us a proper schedule or plan, no just a book that my partner didnt even read, in fact they didn't even ask if he could read. I feel sorry for the people who don't have support 

Hi Amanda. I can’t add much to everybody else’s comments apart from more shock 

Please action a complaint to PALS straightaway. It will get you noticed