Hi, my partner, Stuart, has cancer in two lymph nodes pressing on the laryngeal nerve. He’s had 3 rounds of chemotherapy. During the treatment his salivation has got so much worse. He is unable to swallow due to an oesophagectomy in 2024, so he’s having to spit out the saliva and this is from morning to bedtime.
As he has a tracheostomy (no lucky heather here) he can’t have injections to reduce the saliva as it will impact on the tracheostomy. He could use Scopoderm patches but no pharmacist has these in stock and are unable to order. I wonder if someone could help. We’re at our wits end as the medical team cannot help due to the complexity. To think he was perfectly healthy before he had the surgery. I’m heartbroken.
Hi Galloway, I’m Tony one of the Community Champions, as you see I have a Lary which is a stoma in the neck as your Partner will have having a Trachy, unfortunately having this problem the result for a while will be excess saliva, is it saliva only normally also we also get an over production of sputum which would be through his breathing.
Saliva – may be stomach as you say he’s also had OS like myself I was with my Laryngectomy given Lansoprazole tablets that really reduces acid reflux
Sputum – this my GP prescribed Buscopan- yes it’s a travel sickness treatment but there’s an ingredient that helps reduce production, as he has difficulty swallowing there is a behind the ear patch for same treatment.
Another good source for support is a charity called swallows :
https://theswallows.org.uk/support/resources/
Then there is our support booklets this is the link for Head and Neck Cancers
I don’t understand why your support team can’t help with matters, if it’s the breathing part – sputum they can loan a suction pump to keep the trachy clear
I do hope he starts to improve I have experienced his problems and it really is so debilitating and extremely frustrating
Take care both of you , Tony
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Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022
Good evening Galloway, I can't really offer much advice on this, but maybe you could ask for a second opinion with a different consultant, as they might have a different approach, as it seems a bit hard to leave you and your partner in the lurch. Wishing you both all the best, good luck.
Chris x
Hi Galloway. The issue you describe sounds so hard for your husband. I do hope that you can find something that can help him to some degree. To a much lesser degree I have a similar issue but for another reason and related to my jaw cancer ops so I understand how the excess saliva affects your quality of life. I have constant dripping of saliva out of the right corner of my mouth due to a mandibulectomy that I had in 2013. The right side of my mouth over the years has developed a marked droop compounded by more ops over time. I have had to cut up a towel to mop up the constant saliva. I have been referred to have fillers on the right side of my mouth to see if this helps so I have my fingers crossed. I have my fingers crossed for your husband too as I understand how trying the issue is to cope with day after day.
Lyn
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