Hi
Hi Juniper. So sorry to hear about your father. I do cook with tofu. It’s fairly tasteless and takes on the taste of what you cook it with. It would take some blending.
The easiest thing in your mums case might be to use tofu as you would meat in a stew or soup then blend the lot down.
Has your father been given replacement drinks such as Ensure or Fortisips? These have everything he needs
Best of luck to your dad xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oh your poor dad. I can’t see why he is having to eat if he can’t. chris2012 is another Community Champion here and he has been PEG fed these supplements for years. Perhaps your mum can ask why your dad can’t do the same?
Im sure Chris will be along later tonight to comment.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Juniper74 , as Dani said tofu is very bland and needs cooking sauces to liven it up, if he is struggling with swallowing then i would seriously consider switching to liquid food supplements like Ensure or Fortisips as it takes less effort to swallow rather than normal food, also blended down soup might help. To be honest i would ask for a PEG feeding tube to be fitted so the supplements and meds can be administered by a syringe this will take the discomfort from his mouth as it goes straight into the stomach. I have been using a PEG since 2009 as my swallowing is not very good except for thin liquids like water, tea, coffee, etc, and the occasional beer. If a PEG is fitted he can also be fed via a pump. Failing this maybe an NG tube that goes down the nose and throat but i believe you have to have to be pump-fed. Don't let him suffer from the pain, I'm sure his consultant can arrange a feeding tube to be fitted unless there is a medical reason why one cannot be fitted. Please re-post if you have any more questions or need some reassurance, all the very best to you and your family, take care.
Chris x
Hi Juniper
I just thought I'd give you a couple of other links.
I see you have joined the Family and Friends group but there are another couple here ...though please forgive me if I'm overloading you with information
Supporting Somebody with Incurable Cancer
0808 808 00 00 Macmillan Hotline which is open 7 days a week from 8am to 8pm
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
My dad lived for 20yrs being peg fed seems harsh for yr dad to be in more pain at this very hard time when having liquid food would ease some of his pain so sad
Absolutely. I can't imagine why a dietician would suggest such a thing. I can only imagine that he/she hasn't actually looked in Juniper's Dad's mouth.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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