Hi All
In the nearly four months since treatment ive come on a lot, and the dental hospital discharged me and said my ulcers had healed. In the last few weeks however ive had re-ulceration of the roof of my mouth and tongue. I put it down to pushing too hard on tough foods and scaled that back a lot, and the ulcers on my tongue went again albeit briefly..
Now- despite sticking to easy food they are back again! as are the ulcers on the roof of my mouth, and it is driving me potty and worrying me a bit,. I am also having to clear my throat a fair bit which used to be a huge problem but had gone away (it could be anything though - post nasal drip, having the radiators constantly drying out throat etc).
Since getting a clear pet/ct scan my next appointment is miles away, i was officially discharged by my consultant and will have a different one.
So, since the problem isnt my food...i am looking at my mouth care products! perhaps that is causing me issues. I currently use sensodyne (an sls free version) and had recently bought colgate total as my mouthwash (which may be causing issues). I also use boots dry mouth expert. And alloclair when i have active ulcers.
I have bought a tonne of ora nurse toothpaste to try, but i was wondering what toothpaste/dry mouth product / mouthwash you have found good and non-irritating?
Also in the early-ish months following healing, did anyone else have this issue of their mouth being incredibly prone to re-ulceration?
Thanks.
Trev
I use Oranurse toothpaste and BioXtra mouthwash. You can get the mouthwash on prescription if you ask nicely.
Ulcers will pop in and out for a long time I’m afraid. With an RT damaged mouth and compromised saliva they can take weeks to go. Difflam spray is pretty good at easing the discomfort and neat Gelclair helps heal them faster by protecting them.
All those work for me.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Jon, cheers mate, definitely alchohol free mate, agree that can be hugely drying
Thanks dani- i have just ordered a few bottles of 'BioXtra® Dry Mouth Ultra Mild Mouthrinse' i didnt want to wait for a prescription, but gosh its quite pricey isnt it! 
I wouldnt wish it on anyone but it is reassuring to hear that im not unique in having previously healed ulcers keep coming back and going
Thanks again
Amazon has them to kick you off. I usually have a scout around as prices can change. My last Bioxtra came from Dental Direct and Oranurse from Amazon.
Difflam from pharmacy.
Gelclair Amazon has as well.
Press your GP for the gelclair as it is really expensive
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
It was Hazel who put me onto the chance of getting it on script. I manage two a month from GP and buy two myself.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Hazel
I was eating everything and anything, pukka pies, sausages, fish and chips, chinese/indian takeaways- i gained 2kg back in 3 weeks!
When i first got the ulcers back i went onto softer food again, omlettes, cottage pies, faggots, soups etc..and at first the ulcers went in response
Now, despite the easier diet they are back - hence wanting to try a different mouthcare product
It could well be the colgate, it does sting for a few mins after i have used it, fingers crossed switching to ora nurse and bioextra will do the trick
Trev
