Anyone had this? Apparently they simply cut the tube close to your skin, push the internal disk into your stomach, and it passes painlessly through the digestive system and out into the loo! Sounds a doddle.
Louisa
Hi Louisa
Ive never heard of this but I’m guessing others will have.
My hubby’s peg was held in place with a water filled balloon.
So all he had to do to remove it was to let the water out of the balloon and then pull it out. A district nurse came to do it though as he wouldn’t let me.
Im intrigued about your tube as it sounds different to hubby’s.
Keep us posted.
Love
Sharon xx
Sharon xx
Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20
Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20
Hiya,
It’s a Freka PEG, which has a plastic disc on the end; no balloon.
I hope everyone’s fighting fit in your house!
Best,
Louisa xx
Hi interesting let us know how you get on. How are you feeling now ?
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks Louisa, we’re as fit as we can be.
Let me know how you get on with the PEG removal.
How are you getting on in general? Xx
Sharon xx
Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20
Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20
This must be a new idea/invention Louisa, it sounds great as when i had The Freka tube i had to go into hospital to be anaesthetised so they could remove it so it would cut back on this . I now have the balloon type and in my opinion the Freka is better, thanks for this information . I hope all is going to plan ,take care .
Chris x
Hello, lovely Haze,
I am still a bit mucusy, and have yet another PEG infection!! Still, I have lost a stone in weight and look fabulous, But truth be told, I am full of collywobbles because I get the result of the has-it-worked PET scan tomorrow afternoon - eek!
apparently there are two ways of removing the Freka: the “cut and push”, or by endoscopy. apparently the cut and push involves a scan, and is not actually recommended by the Freka manufacturers, but is used when pulling the end disc of the PEG back up through the oesophagus would be risky. What a jolly choice! I bet ENT will go with the endoscopy removal. We shall see.
Hope all is good with you.
Louisa
Hello, I’m starting to eat little bits of very wet food now (ice cream, soup, Pot Noodle (!) ), but it seems to displace an equal amount of mucus, so ends up more spitting than eating. I have a new PEG infection, but I knew what it was the second it started this time, so blasted it with Co-amoxiclav. Seven days feeling sick, but I don’t really care.
The phone call to tell me whether it’s all worked will be Tuesday afternoon. the oncologist said we need a little bit of luck, so I am pretty scared, to be honest. I react very badly to general anaesthetics and don’t want to have to have surgery. I shall be announcing the result on here!!
Louisa
xxx
Good luck with results tomorrow xxx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Well I have so many things crossed I’m a bit of a contortionist!! Xxx
Sharon xx
Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20
Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20
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