Just waiting on further appointment

This is exactly the same as me..I have had the same as you and  I am now going for PET scan to find primary site ( hopefully the tonsil but they need to be sure)

I am petrified but they cannot give a plan until the PET scan results are back..haven’t even been given appointment yet. Good luck

Sorry to hear this - could they not see on the MRI scan? That’s my next test if they tell me on Wednesday the MRI couldn’t pin point it. Hope your  date comes through quickly.

Hi, the MRI was not conclusive.. they THINK this may be the primary site but want to be sure. Hope yours is more conclusive and that cuts out more tests x It’s the waiting that’s the worst.. if we just knew then we can concentrate on the treatment required x 

I hope it is for you then you know what you are dealing with. I agree the waiting is horrendous- so panicky and feel like it’s an out of body experience x

Sorry to see you here but we are a friendly and knowledgeable bunch and there are lots of people here who have been through all this. 
You’ll have lots of questions as time goes on so drop in for help. 
Waiting is horrid but all you can do is try to keep busy and put your trust in your team. This is all new to you but your surgeons oncologists and radiographers do this all the time and they are good at it. 
I was 68 when I was diagnosed and I am 18 months post treatment. It is a difficult journey but doable with a return to a reasonable and enjoyable normality. 
Please dip in and ask away. The medics are great but i found it takes a fellow sufferer to really empathise and I got lots if encouragement and help here. 
Please do send a friend request if you feel you might like to chat about some things via private message. 

I did it and life is great. 
I wrote a blog to try to come to terms with my feelings. It was really for me but quite a few people looked in and we swapped stories. 
you might not feel ready for  all of it but it’s there if you want. 

Good luck. 
Don’t forget to trust your team. Once you’re in the system things will move faster than you imagine. 

Thank you, I may take you up on that further down the line. I’m definitely going to read your blog.

Beesuit is right the treatment isn't easy, but it is doable with good results. There are many of us on here who have had the same, and are only too happy to answer  any questions you have, and know exactly how you are feeling. Do come here and ask about anything that  is worrying you.

I wish you both all the best.

Regards Ray.

Hi This is Hazel I am almost 2 years post radiotherapy for tonsil cancer with several affected lymph nodes, I had 35 radiotherapy sessions and 2 chemotherapy.Wont quite welcome yountomthe club quite yet until yoube  has your consultations, But treatment is doabke  if I can do it anyone can I also have a blog details below there’s a good crowd of us in here who so to speak have been there and done it git the t shirt etc .

any questions just shout out  

Hazel x

HI This is Hazel i am almost 2 years post radiotherapy for tonsil cancer with several affected lymph nodes.My primary was in my right tonsil but it’s nit u usual for the primary not to be found it just means the treatment will be targeted slightly different nothing major to worry about as worrying about cancer is bad enough Honestly waiting is the worst part in e a treatment plan comes into play your mind gets into survivalists mode. It’s not easy but if I can do it anyone can honestly .

I have a blog details below , plus we are a friendly bunch in her and will help as much as we can.

Hazel x

Agree completely with what's been said above; without for a moment wishing to underestimate the impact that your diagnoses will have had on you  and  you both sound like you have pretty "textbook" cases that your teams will have been dealing with for years. The majority of us on here have similar stories and although my "primary" was a bit different to most my treatment was very similar and as Ray, Dani and Hazel have said above it's tough but it's manageable.

If you want to overload on blogs mine is linked below; same as Dani I did it just for myself initially as a catharsis and so I could go back and remember how I felt in future years, found it a good way to let stuff out.

You will be OK though no pretending it's an easy ride, stick around and ask ask anything and everything; there's no such thing as a stupid question on here!