Sinus cancer.

Former Member
Former Member
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Hi everyone, I'm not very good with tech, and I've never really done any web chats, embarrassing for a 42 year old I know but bear with me!

I have been diagnosed with a snuc during lockdown that has spread to the lymph nodes in my neck and also into the brain cavity. I have had 2 rounds of chemotherapy so far and I am due to start a combined chemo and radiotherapy treatment on the 13th July. It will be radiotherapy 5 days a week for 6weeks and chemotherapy once a week during those 6 weeks. 

I'm just wondering if anyone has had a similar treatment in a similar area and could offer me a bit of advice about what to expect, I've been told it probably will be quite hard going but any helpful advice or pointers would be really appreciated. 

  • Former Member
    Former Member in reply to Warrior girl

    Ah your a Taurus, my mum and my brother are both Taurus too and they are pretty stubborn! 

    I came back into hospital yesterday and I've been nil by mouth since midnight. I should be going to have my feeding tube fitted any time soon. I'm just watching everyone else eating breakfast at the moment!! Very jealous! 

  • Chippy I'm soo sorry to hear this, what happened? Is it the nose bleeds? Why are they fitting a feeding tube? Chippy I'm thinking about u, ur really getting a tough run of it, message wen u can Muscle

    Dee
  • Former Member
    Former Member in reply to Warrior girl

    No it's fine Dee, the feeding tube was always on the agenda. They said eating could become a bit of a problem when I get a couple of weeks into the radiotherapy so they want to fit the tube as a backup to make sure I keep getting all the nutrition I need. So you never had a tube then Dee? 

    The bleed seems to be under control with the packing up there at the moment but the headaches and the stinging behind the nose and eye is getting worse which normally means a bit of tumour activity. But it could also be due to the pressure from the packing.

    I'm glad I'm starting radiotherapy next week to start zapping this shit! 

  • So will they let u out once its fitted Chippy? No Chippy, they talked about giving me one a couple of times wen I was very low but I really didn't want one, I'm not even sure why! So I just pushed on drinking my food lol, it took 2 hours to drink my dinner lol. 

    Chippy I hope u get out soon! Isn't it Monday u start? 

    Dee
  • Former Member
    Former Member in reply to Former Member

    Hope all went ok Chippy thinking of you and your family X

  • Former Member
    Former Member in reply to Former Member

    Hi Chippy,

    How are you bearing up how did your first session of radiotherapy go?

    thinking of you and your family 

    Helen

  • Former Member
    Former Member in reply to Former Member

    Cheers Helen. Yeah first session was ok. I had chemo in the morning then the radiotherapy after. To be honest I can see how it might freak some people out, when the mask is put on and clamped down you cannot move, eyes closed, breathing through a tube. They put the tunes on quite loud, so I had hey yaa by outcast blaring out which lightened the mood!! Also the two girls doing it were lovely and we had a bit of banter in there.

    Hows your dad, any more news? Thinking of you all. 

    Chippy. 

  • Former Member
    Former Member in reply to Former Member

    Hi Chippy,

    you can’t beat a bit of hey ya I would have found it hard not to do the dance at the same time you should have bought the Rocky soundtrack ask them to put that on.

    Dad got his results from the biopsy he has maxillary adenoid cystic carcinoma in his left side of his face it has travelled through his nasal upwards to the base of his skull and gone to the back of the head 

    they can’t offer surgery as it’s to risky on his brain and in all the left side of his face they have found multiple lesions on his liver which they have requested a biopsy booked for this Friday and a PET scan which he has today he is now under the oncology team to offer Pallative chemo we won’t be able to know what plans are for treatment until they know if the liver is secondary tumour or a second primary 

    Another downwards on the old emotional rollercoaster but we got to take each day as it comes and always look on the bright side of life as Monty Python would say

    how did today go today Chippy 

  • Former Member
    Former Member in reply to Former Member

    I nearly was doing the dance Helen, and I think they take requests aswell!! 

    The ride on this rollercoaster is anything but fun Helen, like you say, you have to take each day as it comes and grab any positives and good days with both hands.

    Me and my wife are thinking of all of you and hoping your dad gets some good news soon.

    Staying strong in the mind is so important in all this and it sounds like your dad has got a very strong ,stoic and loving family around him and that is everything. 

    I'm all good at the moment, been a little bit slow in replying cause of visits to hospital, bleeds, headaches, lack of sleep etc not that I needed any excuses to be slower at typing!! 

    Chippy

  • Former Member
    Former Member in reply to Former Member

    Thanks Chippy you are doing amazing still writing Whilst going through your treatment

    power of the mind is important in this fight against the big C I know my dad will fight this and he has his girls in his corner fighting it with him

    hoping to see dad’s oncologist later next week they got their MDT meeting Wednesday so will discuss dads case then it’s the waiting game that the hardest

    hope today goes ok Chippy just think it’s getting another blast to kill it and it is killing it each time 

    stay strong Chippy thinking of you and your family