what to expect

FormerMember
FormerMember
  • 24 replies
  • 83 subscribers
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hi everybody, cant fault n.h.s. here everything seems to be happening at once here.

ct,mri,assessements, procedure dates. i only pointed out a lump on my neck as i was going out

of my docs. 1.5 wks ago. tongue and lymph nodes. now they are talking about tube to feed in

stomach. wish i hadn't mentioned this.

  • But good job you did mention it. You’ve saved your life. 
    Lots of us, young and old, have been through this, survived and thrived and are here for support and advice. Most of us were in rude health till the doctors got hold of us too. You are not alone. 
    Stay and Good luck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I was only visiting my GP back in 2013 because I'd hurt my wrist while on holiday "catching" a falling rented scooter, only while I was sat in the waiting room it I felt a bit silly because the pain had largely gone. Decided to mention the little swelling I'd noticed in my neck while shaving on the same holiday and whoosh, someone hit the "fast forward" button!

    Eternally grateful to my GP because I didn't actually "fit" the official guidelines for a fast-track referral but he did one anyway bless him. Had I not hurt my wrist would I still be here? I'll never know.

    Anyway as (Dani) said above it's a good job you did mention it; the earlier it's caught the better.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • FormerMember
    FormerMember

    Hi Manup1

    Welcome to this fantastic forum . Stick around as it's a wealth of knowledge full of hints, advice and tips from guys/gals that have literally been there and got the t shirt. I have found it invaluable.

    My hubby Harry aged 53 found a lump in his neck last summer - aug/Sept time. He mentioned this to me and in October 14th to be exact was that 1st gp visit, fast forward.....diagnosed on 22 November with SCC secondary- lymph node. Biopsy of tonsils / base of tongue mid Dec led to primary being found - base of tongue . We got this news mid Jan I believe .

    So 

    18 weeks after that 1st gp visit

    Monday this week had RIG fitted.

    Wednesday this week started what is to be 6 weeks of 30 radiotherapy with 6 chemo.

    All the very best to you. Stick around , this group has been amazing with advice and support.

    Lisa x x  

  • Hi welcome to the club that no one really wants to join plenty if advise in here I am now 18 month post radiotherapy for tonsil cancer and effected lymph nodes lAny questions ask , and when you feel up to it I have a blood with lots of links to other sites !

    good luck 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    hi, i'd like to thank every one for their replies. i have had my neck lump for the best part of a year.

    but as the name implies (manup)  it is nothing to worry about. about 2"long roughly 1" deep.

    fit as a fiddle apart from multiple pulmonary embolisms april last year. so there was enough going on

    didnt want to bother the wife. but god i could sleep for scotland. getting biopsies next week. base of tongue and lymph node. i keep saying to myself it's o.k. nothing to worry about,but talking to specialist

    and my doctor it seems to be pointing otherwise. i put taste in my mouth down to altering drugs but thats all leveled out and the taste if i could describe it is like the saliva glands are going 20 to the dozen. does any of this make any sense?

    paul 

  • FormerMember
    FormerMember in reply to FormerMember

    thanks lisa, i'll be in touch.

  • Hi Paul

    my lump was in the hollow of my collar bone similar size to yours  if I am honest I felt it as we were just boarding ferry for 10 week trip to Spain ,thought ok I enjoy pulled it carrying stuff up 4 flights of stairs on boat .Cycled 1100 km whilst away not and for a 61 year old who unknowingly had tonsil cancer that had already started sending dead cells to lymph node, it’s surprising what you learn whilst on this  expedition! Refuse to call it a journey journeys are to me me nice things !

    I honestly had no other symptoms no pain no sore throat no loss of appetite in fact I had never been as fit in my life . Fast forward home drs has lump still there 14 days cancer pathway and has  they say the rest  is history. we are a friendly bunch in here many of us have read the book got the  t shirt .Between us we will help you as much as we can .

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    thanks hazel,will check your blog with your permission if thats ok.

  • Hi Paul

    Thats perfectly ok , so far I’ve had over 13,000 views ,nit bad for a little lass from Yorkshire who started it has a means of controlling what in my head was an uncontrollable situation ! Now I've had contacts from Australia to Zimbabwe ,so please give it a read any questions just shout out 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    will do, have a nice night.

    paul