Post treatment for hpv tonsil & tounge cancer

Hi Daveg710

Presumably you are still being seen in Head and Neck Clinic or similar every 6 weeks?

I would contact your team to inform them of your concerns and request an appointment for them to check.

All the best 

Linda

H Dave

5 months on from radiotherapy you should still be being monitored frequently. Have you a dedicated nurse liaising with your consultant you can contact to bring your next appointment forward?

Everyone's busy playing catch up after new year.

They have said it may be a couple of weeks, as appointments take time. 

So that will become 4 weeks or more now after xmas & new year.

I can cope with most stuff....but the waiting !

Everyone's busy playing catch up after new year.

They have said it may be a couple of weeks, as appointments take time. 

So that will become 4 weeks or more now after xmas & new year.

I can cope with most stuff....but the waiting !

Waiting is pants. 
The amount we do, you’d think we would get good at it !

have you had a PET/CT post radio? 

No.    Not for the head & neck

Hi in 2018:I finished radiotherapy and chemo 31 st August had regular 6 week checks by local ent consultant and had meeting twice with oncologist.my pet ct scan was 4 January 2019; so I think you need to check when are you having your scan to confirm the cancer has  gone as a-matter if urgency that should put your mind at rest. Do you have a Macmillan nurse ? If so get in touch and ask if not you need to speak to consultants secretary and get things moving. 

Try not too stress , remember yiuve come through the hard stuff treatment .

keep in touch Hazel x

The metallic taste I get from time to time as well it’s related to dry  mouth which I presume you still have ? I had it all day Sunday but today am fine 

hope this helps

Hazel

Thanks, ladies for helping out in this post, i agree with this waiting time being too long, at one time it was spot on, they seem to be going backwards in that department. Best wishes 

                                                              Chris x

Hi Daveg710. I agree with what everyone has said. You have a new lump and although it could be all sorts of things, you need fast confirmation that it isn’t a recurrence. Please contact the H&N nurse again and secretaries of consultants and make then understand that you have a new lump, new symptoms and you are worried. The whole point of our frequent follow ups in the 1st year or 2 is to look out for this sort of thing and treat it quickly. You really should be seen this week.

Once you’ve  got your appointment, I would head to GP and get something for the anxiety. I know I would be struggling to cope in your situation with this uncertainty. So sorry you are having to deal with this And fingers crossed you get a quick resolution and reasssurance. You may have to be a real pest though......

Hilary