Hi
Last week I was told the lesion and lump in my mouth is cancerous, SCC I seem to remember (a bit of a fog after that).
I'm being referred to a Maxillofacial consultant but the dental hospital mentioned I'd have up upper right hand side teeth and bones removed but no reconstructive surgery, likely to build up a palate (still a bit of a fog). This may change when I see the consultant.
I'm just wondering if anyone out there has any advice on any other options available that you know of or have experienced.
We have put together some questions my husband and I want to ask such as is if they don't do reconstructive work, can it be done elsewhere, if they carry out the work and no there's no reconstruction can it be done at a later date. We will also ask them what my options are.
I don't know how long after seeing the consultant an operation will happen. I've just had a scan and the results of that may well change what happens to me.
Any little bit of help would be so much appreciated and many many thanks in advance.
Seabee12 x
Hi, I've had the upper right side of my jaw and teeth on that side removed and have an obturator (which I am guessing is the palate that they mentioned?). I know it all sounds really disfiguring but it may not be so. I look no different to before the operation, just still a bit swollen on the right side of my face, and my family say I sound exactly the same at the moment. I am currently on week four of six weeks of radiotherapy to the area.
I thought you might find this site useful http://www.maxillectomy.com/
The blogger has had his upper jaw removed and an obturator. He has videos of himself on there talking and pictures of the obturator that replaces his jaw.
Hope all goes well for you
Cheryl
Hi Cheryl
Thank you for replying and letting me know what you've gone through. That's great news that it's gone well and you can still be and look like yourself, apart from I guess the emotional side of it.
I hope all is going well with your treatment and in 2 weeks all will be ok for you. I'm still coming to terms with the news and finding it hard to concentrate, there's so much on here its unbelievable and people have been wonderful.
Thanks for blog link.
Lynn x
Hi TDN68
Thank you for your message. I've got an appt today with maxillofacial surgeon/team and a load of support people. On Monday gone I met the consultant who discussed what would happen and I'm due to have OP end of December. Still scared of it all.
Hope all went well with the Max fac consultant and his team today Seabee x
Chris x
Hi Lynn, that's good,i hope they managed to answer some of your questions, yes it starts to get busy now with all the appointments etc. Good luck with the operation hope all goes well, please let us know how you get on. Take care, stay strong
Chris xx.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007