Hi.
Well I'm 3weeks post treatment and starting to eat small amounts of foods .
I'm still sore when swallowing but I haven't lost my tastebuds.
Any ideas on different textures of food are welcome and any routine before eating Welcome.
Good going
Don’t try anything scratchy obviously but it’s just a case of experimenting. I found the trick to getting anything down was to take the tiniest sip of tea with the mouthful of food I was chewing. If I took a big sip to actually swallow it I filled up with liquid pretty quickly.
I tried very quickly to actually abandon sloppy food so that my throat actually had a bolus of food to swallow.
i kept up my swallowing exercises until I was confident I could handle meat chicken and bread
My taste buds were fine at three weeks but sadly deteriorated somewhat for a while before gradually returning
10 months down the line my taste isn’t back to normal but I enjoy most things apart from citrus fruit which is far too sour
Hope you get on well with your eating
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi
Thanks for your reply.
I am the same I make sure ive got water beside me when I'm eating and the food I'm eating I make sure ive to chew it and use my muscles rather than soft food although I'm a lover of puddings.
I suppose it is just trial and error and enjoy food again.
Puddings?
Tell me!
I have developed such a sweet tooth but It's trade off between eating sweet stuff and a manic obsession with tooth brushing
Hopeless!
I even keep a comprehensive tooth cleaning kit in my handbag!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi
OH lived on porridge (the sort that comes in sachets that you measure the milk in) with golden syrup, and soup! Then rice pudding and custard, progressing to mash, mince, and now most things that aren't dry or spicy. He can't eat cake unless its drowned in cream, bread is ok but not the crust....it has been trial and error, as others have found too, I think. The message from our dietician was to focus on calories rather than balance at first. He still has the occasional Fortisip to top up.
Difflam helps with oral hygiene, I'd say he's only been able to clean his teeth properly in the last couple of weeks, it was making him retch before then. Dentist seems happy enough though :-)
Good luck, sounds like you're doing really well!
...ricoshay x
Hi.
Sounds a lot like mine but I'm a lover of chicken so I'm managing small pieces at a time that's like chocolate for me sometimes .
You have just put an idea in my head for cake . I used to like cake with custard over it.
For some reason probably healthy eating for the whole house I haven't had it for ages.
Mm tonight here it comes
Cake and custard! Yes!!
I forgot there were 2 other staple dishes. Spaghetti hoops with eggs (scrambled or poached), and for variety, eggs with spaghetti hoops.
I think we have shares in Heinz we went thru so many tins!
... Ricoshay x
Lo
Funnily enough just the other night I bought spaghetti hoops and sausages mmm
Not very keen on eggs but can eat scrambled and that would be good with spaghetti hoops .
All sounds like your going very well in the right direction. Try manuka honey instead of syrup if possible as really good for healing and healthy for us. I lived on wheatabix soaked in milk and porridge with that honey. Also rice puddings. Also drink plenty and build up on any exercise when you have the energy plus cap naps are good to help the healing process. Good luck you doing brilliant Dave
djmay
as a beekeeper I can tell you that any raw British honey from a small producer has similar properties, is cheaper and tastes a darn sight better than Manuka.
PM me and you can have a sample
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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