From USA - Brother with Tonsil Cancer

FormerMember
FormerMember
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Hello All!!
I am actually from the United States and my brother is the one diagnosed with Tonsil Cancer (spread to Lymph Node in neck).  I found this community with a search for "Tonsil Cancer Forums", via Google.  I do know that much of the information here is specific to the UK and Macmillan in particular, but in reading some of the discussions, I have found tremendous information about Tonsil Cancer, treatments, side effects, etc.
I applaud all of the participants on this site for your courage, perseverance and honesty in dealing with the hand of cancer that you all  have been dealt.  I am trying to find out as much information as I can, in order to support my brother, his wife and my nephew.  Although I am in the US I hope that it is OK that I joined.  I may not post much, but I am very interested in those of  you that post here with your experiences, questions and concerns.
Thank you for this website.
From the US - AlynnMac
  • Although my cancer was base of tongue we are all in the same oropharyngeal boat. 

    I have found this forum invaluable 

    You don’t get enough info from your consultants and here at least you do find the questions to ask 

    i wish you and your brother well and hope your journey is as smooth as can be. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to Beesuit

    Bees!  Thank you for  your reply.  I hope all is smooth, as well for all of us!

  • FormerMember
    FormerMember

    Hi AlynnMac

    Welcome and so pleased you found us! There’s lots of help and advice on this site...I’ve also joined a forum in Australia that I’ve joined as found it very useful too!

    Your brothers cancer sounds the same as my partner, who had cancer in left tonsil, which was found after his swollen lymph node on the same side was found to harbour cancer cells.  He had the tonsil removed and is now five weeks through six of radiotherapy and has had two bouts of chemo on day 1 and day 21.  We will have to wait three months after treatment finishes for a scan which will show whether the treatment has been successful....

    It would be interesting to know the treatment protocols in the States but everywhere is different I think, and the treatment is individually planned to each persons cancer as far as I can tell.

    Good luck and let us know how your brother gets on.

  • FormerMember
    FormerMember in reply to FormerMember

    Jaffa:

    Thank you for the reply.  I will update on his treatment protocols, once they are set up.  I believe he starts treatment on 8/9, but they live about 5 hours away from me, so I get limited information.  All I know is 8 weeks of Chemo and Radiation.  They are waiting on surgery to see if the tumor on the tonsil and lymph node responds with chemo and radiation. 

    God Bless all of you dealing with any type of cancer!

    Best of Luck to  you as well....

  • Hi Alynnmac , welcome to the Macmillan caner forum and of course its ok you have joined , I have not suffered from tonsil cancer as my cancers where in different areas of the head and neck but please feel free to ask any questions as there are others on here that have had this sort of treatment . Lets hope the radio and chemo will shrink the tumour so they can plan for surgery if required . Im sure you have found out quite a bit of information on here through reading older posts , wishing you ,your brother and family all the very best and hope all goes well , take care .

                                                                     Chris 

    Its sometimes not easy but its worth it ! 

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  • FormerMember
    FormerMember in reply to chris2012

    Thank you All for the warm welcome!  I am reading, reading, reading, just so I can be informed on what my brother (JW) might experience, just to be able to offer some help and support. 

    This is a wonderful website with wonderful community members and my heart goes out to all of you that are dealing!

    AlynnMac

  • Hi this Ia HaZel I am 11 month post radiotherapy for tonsil cancer with all clear. I have a blog detailing my experiences 

    www.radioactiveraz.wordpress.com give it a read ask any questions 

    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank you!  I have read several of your entries, and Wow!  You have really had a go of it!  I’m glad to read you have the all clear!  Hopefully my brother will end up all clear, as well.

    Thank you for blogging .  It helps to read that others made it through!

    AlynnMac