Hi
I gave just received provisional results from my pet scan which indicate the primary tumour being in my right tonsil. There is something in c3 too but nothing spread beyond this.
Has anybody else had any experience of this they could share?
Thsnk you x
We're all different in how we approach this mentally KMJ but for me my HPV status wasn't of interest, same as my staging and any "percentages"; I didn't ask for any of them and I still don't know what they were to this day. I simply asked an oncology registrar at one appointment what she thought my outcome would likely be; she said "total cure" and that was all I needed, put myself in their hands, the reason for the cancer was of no interest to me.
I know others want every detail laid out for them and there's nothing wrong with that at all, like I say we all have different coping strategies, mine was blind faith in my team (not to say I didn't make a noise when things were tough) and it worked for me.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
