14 months post treatment

Hello Emma , Yes it is great news when we are given the "all clear "news, all you have to do is hold onto those positive feelings to see you both through. I don't know much about cancer in this area of the head, i know that the treatment can make the immune system weaker so sometimes we struggle to get over viruses etc, maybe this is what is causing these symptoms, as long as he is not losing weight, appetite or is feeling fatigued all the time then he should be ok until the next checkup as it does not sound too serious. Take care and all the best for the beginning of May, fingers crossed. 

                                                                        Chris x

Hi my husband has nasopharyngeal cancer  what your husband had do you have any advice he’s struggling to eat at the moment  thank you Dee 

Hi Deebo how far into treatment is your hubby ? Does he have a .peg ? Or feeding tube ? Had any high calorie drinks food supplements bern prescribed for him ?  If u let me know where in treatment you are can offer more advise.

Good luck hazel x  

Hi Dee 

Grant struggled to eat throughout all of his treatment unfortunately. He was prescribed fortisips which gave him all his calories he needed and this was all he could manage. He didn't want to go down the road of having a feeding tube as this would have been his only other option. The only thing he managed to eat very small amounts of was omelette so that may be worth trying.

Anything else you need to know please ask, as it's such a rare form they're arent many people I found that had the same experiences.

What treatment has your husband had? Grant also found steaming helped him with clearing his sinuses etc.

Take care 

Emma xx

Morning it’s so nice to find someone who has a idea what it’s like sorry I am dyslexic so hold to your hat lol words get missed or jumbled up 

he was admitted for elective neoadjuvant cycle one was fine 5 days in 14 home then cycle 2 fine until bloods was all over not good got home less than 24 hours readmitted dehydration sick had a stint in hospital another 7 days decide to not do cycle 3 as kidneys was poorly so has Day case one bag cemo every 3 weeks radiotherapy for 33 days been ok ish good and bad days but struggling eating even weetabix porridge ice cream soups forsip drinks struggling oh he’s got a blood clot it’s horrible to see him going through this shit thank you for replying Dee

Dee how often do you see the dieticians? I was struggling to eat from week 4 so I asked for the feeding tube nasal one it wasn’t pleasant but necessary otherwise the recovery period would have been much longer as we need our strength when radiotherapy finishes. Just a thought. I got to the stage even water hurt and you need hydration or more problems will occur. Have acword with consultant or nurses. 

Even with feeding tube I still list 2 stone without it I dread to think what o woukd have list. You should be aiming fir at least 2 litres of water a day preferably 3 withbfeeding tibe my hubby could give me extra liquid plus administer my tablets crushed up in it.

Good luck

hazel x 

Morning hi he was admitted on Monday he’s has a tube in thank god he’s was saying water even hurts they are training us up so we can do the feeding at home he feels no one listens and getting very srt tempered repeating him self to dr dieticians etc so fingers crossed thanks for getting back to me take care   

Hi deb

re feeding tube presume up the nose one like mine. ? If so I can give you some tips it’s nit easy  main thing to remember his tummy wil have shrunk I struggling to get 90 mins worth in apps 300 caloiries. So imperative yiu do it in small increments I tended to stand with the back lack kn so I could walk around. Joe used to put extra liquid in it as well as crush my meds up and put tgose in. Let me know any help inky to willing 

h x

Morning he was sick last night had a bit off milk and tube came out we was gutted

Hello Deebo

I’m sorry to hear about your husband. I too was in this position last year and after 4 weeks admitted myself to hospital to have a feeding tube fitted. They fed me overnight through the tube at a very slow rate about 100ml an hour. I couldn’t eat or drink at all so the feeding tube is very important and he needs to get it back in place. 

If there is any help I can provide please ask. Especially post feeding tube. It’s not an easy road I’m afraid but it does get better. Talking really helps.

best wishes, Dave.