after 4 cycles of immunotherapy my husband had his scan and we thought all was going well, so we're shocked to find unfortunately the tumour is still growing and has shown no signs of response, so it was stopped. He had chemo prior to this but after 4 cycles that was stopped lack of effect and quiet sever side effects. There are no further treatments, his tumour doesn't express the right markers for one clinical trial, and others seem to be based on similar antibodies to Nivolumab. We decided we didn't want to know how far the tumour had extended or if they detected any new metastasis like wise how long, though we guess from measures put in place 6 months seems to be what they estimate. We had the PICC line removed today, what's hard is after almost a year of scheduled fortnightly hospital visits we have none, just we are hear at the end of the phone if you need us, and a follow up with the pain clinic. Some of the appointments will be taken at the hospice but niether of us actually like it, we feel it's to far away although better than our local hospital which we will avoid altogether.
Good evening Puddlefish , so sorry to hear this, i have been following your posts from day one hoping things would work out. I hate it when this happens as i never know what to say. Please take care, sending hugs and love to you both.
Chris xx
Its sometimes not easy but its worth it !
