Sinus cancer

FormerMember
FormerMember
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hi I posted before, about partners incurable sinus cancer, I’ve be n told now it’s hpv sinus cancer, which could be controlled with radiotherapy has anyone else had this diagnosis that can help me understand abit more thanks 

  • Hi Sarahgp

    I'm so sorry about your partner's diagnosis.

    I don't have direct experience of this cancer (mine was base of tongue) although what I can tell you is that HPV driven cancer generally has a much better outcome and responds well to radiotherapy.

    I wish you and your partner all the best with the treatment and that it has a successful outcome.

    Linda

  • Is sinus cancer included under the title of nasopharyngeal cancer?  If so, there are several people on the forum who either have it themselves or their partner has it.

    Linda 

  • FormerMember
    FormerMember in reply to LindaWT

    Thank u Linda x

  • Hi Linda my hubby has nasopharyngeal just struggling with support any help would be brill Butterfly

  • Hi Sarah this is Hazel i am 8 month post radiotherapy with Tonsil cancer h p v 35 radiotherapy sessions and 2 chemo .one of the guys who had treatment same time as me had nasopharyngeal cancer virus born his treatment and recover was the same or similar to min. I have a blog www.radioactive.raz.wordpress.com where I detail from diagnosis tp recovery  on a weekly basis. It may help you Neil who was the guy also for the all clear a few weeks after me .the treatment is brutal the prognosis is good. Any questions just shout out 

    good luck

    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Blog is www.radioactiveraz.wordpress.com sorry mistyped 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank u, my partners is in his sinus they say it’s incurable but treatable, he can only have radiotherapy as it not be removed, they say it hpv cancer is this the same as urs x

  • Your welcome. Yes I was h p v 16+ my oncologist first words to me was it’s curable.  Ok they couldn’t operate as was of my lymph nodes that was holding the dead cancer cells was too near my spine to operate on but the chemotherapy and radiation killed all the cells. My friends Neil was also inoperable as his was in his nasal cavity but he had chemotherapy n radiotherapy and was clear if cancer late January. We both have to have check ups fir the next 5 years but we’re told the success rate with h p v 16+ is towards the 90 % if caught early mine was T2n2nm Neil’s was T4n2 nm. So maybe ask again as the m d t initial meetings are overwhelming? Agree re inoperable . But remember we can only pass our experience s on as we aren’t medical people 

    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank u for ur reply’s glad to hear u are both doing well, my partner is very positive but I can’t seem to think that way, I’m really struggling with it all 

    sarah x