HI all, I love reading all the positive comments from everyone on here. I was referred to the One Stop Shop at St Thomas' in September to assess whether chemo and surgery or just surgery was the way to go when I received the devastating news that...
Hello, i hope all is as well as it can be with you. I had sucessful Ivor Lewis op earlier this year , 4 pre op FLOT chemo and 4 post op FLOT , and i now realise that whilst overweight I was fitter than I thought I was and that helped a lot with my...
Hi all, hope everyone is doing aswell as they can be. Thought I’d put a post out with the insight of trying to find a solution for something simple like protein powder! I’ve currently just started using a bulking powder from protein works and already...
Hello all, Rod has developed painful ears since his last infusion. The nurse was fascinated at the synchronicity of the slight swelling, on the top tips of both ears. He likened himself to Dr. Spock. This side effect has coincided with his very sore and...
Hello, I received this in an email from Winston's Wish in reply to my query about support for children: If you, your older children or the people you are in contact with on your forum require support, we can provide guidance and information to them...
I can’t believe 18 months ago I came on to this website desperately searching support, help , guidance, a miracle after what felt like my world had fallen apart on hearing my dad had oesophageal cancer needing chemo and surgery to be in with a chance...
havent tackled this one yet, so weight stable, if you call 6 stone 9 stable, but dietician would like to increase the calories, normally its 10 hours plumbed into abbott food pump, bit nervous about having it running next to the bed in case i roll over...
Hi I am 8mths post operation, chemo. In August I started to get discomfort occasionally when eating, then acid reflux and regurgitation. I was referred for an endoscopy and possible dilation. 4 weeks ago endoscopy preformed, not able to have dilation...
Hello I thought I would give an update on where I am at 8mths post op. So I was admitted last week because of reflux, sickness, which started back in August. it got to the stage where I was not keeping even the shakes down and the weight was falling...
I have read on this forum about people being put off the thought of surgery due to the inevitable scars afterwards (if your surgery isn’t fully keyhole). I had my Ivor Lewis operation on 29th February. I was left with a few barely visible scars on my...
