best way to prop yourself up for sleeping and j-peg feeding advice thank you

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hi all thought i would put this on its own chat, after the wallpaper paste making a regular come back last few days, and especially waking almost on the hour coughing and choking, with hardly any sleep and my food line imminent this thursday, whats the best figuration to manage these symptons and the next stage.

have the large "v" shape pillow from the masectomy days last october, and a couple of flattish pillows, but just doesnt seem to prop me up enough, off to the local "range" and "dunelm" after the lung function test today, so assume the fatter the better, tried various ways without much success, apart from sitting up downstairs on the sofa.

also genuinely cant see how the food and pump will work while i am trying to sleep, and with my awful weight at the moment, will assume straight to connect with the food/pump.  quite nervous about this, but know its a must, i look awful and feel so unwell and swallowing is getting harder. with the constant stuck feeling, even with my tablets this morning, which wasnt an issue a few days ago!!

thank you all again for your invaluable advice and experience, heres to a new week, what ever its going to bring x

jules

  •   I bought one of these and they are a Godsend 

  • wow thanks bob, is it all in one or can you choose the bits you get, thanking you

  • I think they do 4, 6 or 7 piece sets 

  • thanks bob, think i have appointment overload, whats the company or is it good old amazon, thank you

  • It's Amazon yeah! 

  • smaller version ordered Sleeping

  • I just brought my dad the wedge on its own and since he has had it it's improved his sleep and allowed him to be more comfortable. I wish I got one earlier as it's made a huge difference. Really worth investing in one. 

  • For those looking to get a bed wedge McMillan do a discount code, ask you nurse specialist or look on here. 

  • Hi,

    My wife tried all sorts of cushion arrangements but, in the latter stages of her disease, she used one of these: https://www.careco.co.uk/adjustable-bed-backrest/ . So that's another option to consider.

    To make the backrest comfortable, I strapped a cushion to it. And she also had a heavy cushion under her knees to stop her sliding down.

    Best of luck with it all.

    Edit to add: my wife also spent about six (?) months in total getting feed overnight via a tube. Pre-op, she was on a naso-gastric tube for about four months; and post-op, she was on a jejunostomy feeding tube for about six months. They are unpleasant things to have to use - but it all worked out well enough. The most tedious aspect of the j-tube was dealing with occasional blockages.

  • Hi Jules

    I found a ‘V’ shaped cushion at the headboard with a couple of pillows behind and a line of memory foam pillows on the opposite side to where the feeding tube entered my side so I could roll towards it and along pillow behind to stop me rolling back worked, the only problem with this was when I had ma PICC line in as this was fitted to my arm on the opposite side to where my feeding tube was meaning I couldn’t lie on it when the pump was fitted during chemotherapy but that was only 1 night every 14 days

    Hope this helps and best wishes 

    Alasdair