1 year post Ivor Lewis, potential Lung Mets..

Hi Rich 

As you may have read first, I have this too. I am currently on a watch and wait as they are very tiny and can't be biopsied, and my latest scan only showed a slight bulking.

I speak to my oncologist again next week as I now have other issues, but fully intend fighting what lays ahead with the same determination I've always had.

I was told by leaving them until they were at least 5mm (all of mine are below that) then they can offer more options - operation to remove them, biopsy to make sure they are in fact cancer and not just scar tissue, immunotherapy, and chemo. Chemo was deemed too much at this stage. 

I hope yours are slow growing, and I'm sure your team will do their very best for you. I know how you must feel though, the upset and disappointment is huge.

Hi Nicky, thanks for your reply. 

I have read your reply from the other thread and I hope the stent insertion clears up the pain you’re having! 

This is the thing everything again is complete limbo, there’s no confirmation that they are but the oncologist thinks they’re likely Cancerous as there is multiple. I was generally quite ill at the time with what I thought was Covid as it felt the same as it did before but I didn’t want to mention anything to change the scan dates. I’ve looked online myself comparing imagines to what I’ve seen on my scan and benign/malignant nodules seem to look exactly the same to myself but i don’t have the training they do.. I was also told that they’re way to small to biopsy with majority of them being 1-2mm. I know you can ask for a liquid biopsy and have treatment built around the findings of the biopsy I believe. 

I’m hoping I’ll be eligible for Immunotherapy on the NHS, if not I may have to look at private admission if this is even possible. 

To say the least I’m really quite scared, it’s not me I’m worried for it’s my wife and my 2 year old lad. I’m only 30 this is the last thing I’d ever expected! 

My only hope now is that the nodules are inflammatory from a recent infection, but from the oncologist’s look on her face it doesn’t seem to be that way, but again nothing is confirmed! 

My first question was when can I start treatment but again there needs to be a mass of tests before anything to confirm the outcome.

All the best!