Last Flot tomorrow, CT scan on the 1st Feb

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Hello 

I have my last FLOT tomorrow, 4 in all, I have also have 2 rounds of Carbo and Etoposide. I have my CT scan on the 1st Feb as they plan is to operate so I have fingers and toes crossed they I will still be on this pathway.

The Flot has been tough as people say, the Oxy-legs were terrible!! the two week turn around has given me about 3 days of normality. I would like to thank those that offered side effect advice as it really helped me to be proactive with the Meds.

The change for me is  from Oct to early December I was not able to eat food, shakes only. I am now eating normally, I have attempted spicy food, like a curry Heart eyes. I find I need to eat more often or I get like an empty discomfort, not sure what that's about?  My sternum feels sore sometimes also? fingers crossed these are gastral related to the growth but I guess it must of shrunk as I can eat.Grinning

I am so looking forward to some weeks without Chemo but also apprehensive, it will be back to that waiting place, and this is it, which pathway? I wish I had not been told IT was high grade, this bit really sticks in my head!!Fingers crossed

What lovely blue skies I have in the south at the moment, beautiful Sunny

  • Hi Jennie,

    Congratulations on a successful operation and outcome. A few more days and you'll be reasonably comfortable and well on the way to getting home. 

    Good luck with the rest of your journey.

    Best regards

    Geo.

  • Hi Jennie

    So nice to hear from you. Hope the op went well and it's great news that you are now on the ward and out of ICU.

    Best wishes

    Dean

  • Hi Geo

    How are you doing. I know you have finished all your treatment just wondered if the eating etc. has got better.

    Just about to start my post op chemo this Thursday. My op went well and they got all the cancer out and histology report was also good with no residual cancer

    Got 4 rounds of FLOT that the surgeon called mopping up any lingering cancer cells

    I had a total gastrectomy so eating is a bit up and down for me too and have lost three and a half stone but hoping that will get better soon

    Best wishes

    Dean

  • Hi Dean,

    Thanks for your response. I'm glad your op went well. Take some getting over doesn't it? Wasn't too bad though considering what they do.

    I lost most of my weight after surgery, due I think to my lack of taste and appetite plus no stomach to talk of.

    Good luck with the last chemo. I had one dose at 100%, one at 85% and a third at 85%. I didn't take the last dose as the first three made me quite unwell. The oncologist agreed with my decision. I got the same explanation about mopping up microscopic cancer cells.

    As for myself, I'm doing quite well. Still trying to get used to a new way of eating, little and often. Weight seems to have evened out at around 100kgs from 137Kgs which is no bad thing. I definitely had it to lose...lol.

    Good luck with the next challenge, it's a tough old journey.

    Best regards

    Geo.

  • Hi Geo

    That is a lot of weight loss which like you say is good in the long run. I have lost 25 kg so I'm now down to 91 kg

    Like you it's a lot to do with not being able to eat much after the op . Considering it was an 8 hrs op and had a total gastrectomy I think I'm doing ok

    It has been a very long and at times very difficult journey but you just have to try and push on.

    My post op chemo Is at 70% strength so will see how it goes on whether I complete all four.

    Keep in touch and will let you know how I get on

    Best wishes

    Dean

  • Bit of a change for me. Had to be incubated again on Monday as I was really struggling to breathe with the pain. Just got the tube out today (a very unpleasant experience) and am still in ICU

  • Hi Cool Blue

    Just seen your post, sorry to hear you are having complications. I'm sure they will get on top of it for you.

    My chemo was postponed this week due to pump at reduced rate was not available so it should start next week

    Hope you get better soon

    Best wishes 

    Dean

  • Hi Jennie

    Hope you are doing ok, can't view your latest post for some reason. Poor Cool Blue has had some complications but think he is on the mend now.

    Let me know how you are getting on if you can please.

    My post op chemo has been postponed till next week as they can't get the pump at the reduced strength at the moment. Also my iron is low so may need an infusion. Apart from that I'm doing ok.

    Best wishes

    Dean

  • Hi Cool Blue

    Just checking in to see how you are doing. Hope you are back on the ward now and out of ITU. 

    Had my line care and bloods taken yesterday and hopefully chemo will start next week as they are ordering in a pump at reduced rate.

    At least I can enjoy the weekend.

    Let me know how you are

    Best wishes

    Dean

  • Good morning Cool Blue,

    I hope this post finds you on the mend and not so much pain, sounds like you have had a tough time, your younger years and pre fitness will pull you through. ICU is the best place, they certainly can get you ready with the next steps. Everyone’s journey is different as are the hospitals.

    Think about those lovely beach walks you will be convalescing there before you know it.

    Take care, healing vibes 

    Jennie Sparkles