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Hi everyone, My name is Gary, 50 years young and just been diagnosed GMB stage 4 at Coventry University Hospital a little shocked is an understatement. Ive decided to go for the full works package, sunroof open, declutter, chernobyl reactor then poison...
Hi I say diagnosed but actually we are still waiting on the results of his biopsy but we have been told by 2 different hospitals that this is what he has. He was taken in 10 days ago for suspected stoke but after CT scan we were told it was a brain...
Possibly a rather odd question to pose to the group- has anyone else noticed a craving for salt? As many of you know, my husband was diagnosed with a GBM4 in Sept 2020. In the weeks/months before his diagnosis, I had noticed that his craving for salt...
Anyone have any ideas of prognosis for a stage IV aggressive bm? No treatment possible so it’s palliative care only. Thank you in advance
Hi all, my husband is on his 2nd cycle of chemotherapy tablets. This cycle he was given the maximum dose of 400mg for 5 days. I know ppl say the fatigue is bad, he is only getting up around 2 hrs maybe twice a day. He is awake from 6.15pm and now says...
I am so confused. After reading about this awful cancer and hearing other people's experiences it would seem the prognosis is different in different countries. Canada state 2-3 years. Is this because they have better treatment than us in the UK? The Wanted...
Hi my dad got diagnosed in jan did amazing with the start of his treatment but unfortunately in may suffered a massive stroke he is so strong still fighting was unable to carry on with his chemo he now can’t speak can’t swallow all to do with stroke not...
Good morning, I’m thankful that I’ve found this group and reading through your journeys on here has given me some comfort today. I wish each and everyone of you all the very best in these rollercoaster times. It’s been a whirlwind 6 weeks since Dad...
Hi everyone. my husband had a brain tumour removed in April this year. he has had 6 wks of radiotherapy/chemotherapy tablets. a month off them now into his 2nd cycle of maximum Chemotherapy tablets. this journey has been horrendous.he was Once a man who...
Oh! When I first joined this forum discussing GBM 4 earlier this year (before I had even heard the term multiform), there was one thing I noticed straight away. After looking over some of the history, I could see that people would join, chat, share...
