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Hi, hi… my dad was diagnosed 4 weeks ago now. He seems to be rapidly deteriorating. Is this normal? Is it the steroids? He’s been on medication 2 weeks now and seems a different person. Not the genuine person I once knew. He keeps telling everyone he...
Neither my husband ( who was diagnosed last June) nor myself are in a good place at the moment and I just don’t know what to do. After his 3 month scan in January we were told the tumour had returned and he was put onto lomustine. Two weeks ago we...
Hi everyone, I hope you don't mind me posting here, I'm Eliza from the Community team. I just wanted to share one of our recent guest blogs from one of our Community Champions, Wee Me . I hope that you might find this helpful to read through: ...
Hi, my sister has recently been diagnosed at 53years. She’s going to attempt treatment but I think she has already to come terms with the prognosis. How do you accept it, cancer is sweeping through our family and I’m lost
Ex husband diagnosed with glioblastoma August 2020...immediately made his will out for all to go to our children,in the event of dying ... Fortunately he's still with us today ..however,we recently found out,his girlfriend had him write a note to a solicitor...
It’s been a traumatic few weeks and I’m just emerging from it all feeling rather shellshocked and not really knowing what is happening. So my husbands tumour grew back 6 months post surgery. The temozolomide and radiotherapy hadn’t done a thing agains...
Hi All, Has anyone tried CeGat against Glioblastoma? https://www.cegat.de/en/cegat-launches-the-molecular-pathology-panel-for-targeted-identification-of-therapy-relevant-gene-mutations-in-solid-tumors/ All the best, Joe
Hi all, Mum who is 72 diagnosed with stage 4 GBM in December and my world fell apart! They have operated and the tumour came back 7 weeks later but it’s the same size and not spread so have to stay positive or try to be. Mum has 2 radiotherapy appointments...
My husband was diagnosed in June last year. He had successful surgery to resect the tumour followed by the standard radio and chemo which he tolerated really well. He then started his 6 cycles of chemo. From post surgery to the beginning of December he...
I didn't really know what title I should start with im in scotland and i 42 fairly fit happily married with a 3 year old. I recently had my tumor removed well 90% of it as anymore was effecting my left legs motor skills as my tumor was on the upper left...
