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Hey everyone! I’m new here, sadly… My 51 year old husband was diagnosed in December. We’ve got 3 young kids. He will be having the awake craniotomy mid January. I’m so scared. What do I do to prepare us for the operation and what did you do during...
Hi all, just finishing my first cycle of 6 of chemo and have very bad fatigue, is this normal. Any suggestions on how I can overcome this., thanks i had it when I was on chemo and radiotherapy but not as bad.
HI everyone Been a while since I posted looking for your words of wisdom but I need to reach out and see if anyone else has experience of the changes we're seeing in my husband this week. I spoke to our nominated CNS yesterday and to be blunt she...
I have posted my story elsewhere in the forums but thought I’d share it here too so people can see what my experience was on this horrendous journey than none of us want to go on. If it helps in any way then at least my sharing is worth it: My wife...
My husband is now 9 months since his gbm4 was excised. He suffered a stroke but was managing in a wheelchair until November when he developed severe back pain and has been in bed ever since. I spoke to the pain management nurse this evening and she read...
Good morning everyone, my husband had a left peripheral vision problem on the morning of the 3rd of November, previously he can recall only 2 occasions of an eyesight issue but nothing too worrying. That day will always play in my mind over and over,...
Our previous lives changed beyond all recognition in the summer when my wife was diagnosed with 2 brain tumours at our local hospital, having had 2 separate set of fits some months previously but clear CT and MRI’s so we had accepted the diagnosis of...
My husband has a Glioblastoma. He has no symptoms yet. Can someone please tell me that his end of life doesn’t have to be so traumatic, I’m reading horrific stories….. I’m just broken
Hi, My husband has just started his six months of oral chemo and had nausea and one episode of vomiting. Any advice on which antisickness medication works best?
Just wanted to say Merry Christmas to everyone in the community. I'm sure like everyone else this one will be both more precious and more difficult than normal. Hope you manage to find some well earned rest and here's hoping for the best in 2023. Chris...
