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My husband was diagnosed with Glioblastoma 2 years and 3 months ago. It has been a very emotional journey, not the way our retirement was meant to go. We were both still happily working until this hit us. I realise we are so lucky that he is still here...
This year is doing its best to push me over the edge. As you know, my wife died in June with GBM. But that wasn't the first funeral I attended this year - a close friend who knew us both passed away in February and it was a sadness to my wife that she...
My husband is using TT Fields OPTUNE treatment for a Glioblastoma (diagnosed and removed at start of year ) along with maintenance chemo therapy and is convinced it makes him feel tired (even more tired than he would normally be just with the chemo tablets...
Hi, I’ve posted before but just wondered if someone can share some information about chemotherapy. My partner was diagnosed in May and since then has had a course of chemo and radiotherapy which he coped with quite well. He’s now finished the first course...
Hi Recently diagnosed with a Glioblastoma, had debulking surgery 10 days ago. Have an appointment today to discuss the next stage of treatment, likely Chemotherapy and Radiotherapy.
My partner 39, died of gbm in July, was diagnosed in feb 2025, he underwent chemo and radiotherapy, was on lomustine also... we had been together 14 years, I cared for him right until the very end, he passed away 3 weeks before his 40th birthday , I watched...
I thought I'd post as I don't often, but wanted to share a positive story of our experiences so far for anyone who is starting out on this journey. My husband was diagnosed with a frontal lobe GMB wild card, methylated tumour in May 2023.What followed...
My husband refused chemotherapy last month which made no difference to his fatigue at all, he had his operation in February, completely his radiotherapy then in May commenced the 5 days on & 23 days off. In April he was hospitalised for blood clots in...
It’s been 3.5 years now since Mum was diagnosed with a grade 4 Glioblastoma and was given a prognosis of 2 years. I must say the last 6 months have been extremely hard. Mums short term memory is terrible, meaning we are just on repeat constantly. Her...
My husband was diagnosed with Left temporal GBM4 Wildtype Methylation in September 2022. We are now at 4 years with no recurrence so he is now classed as a long term survivor. MRI’s have all been stable. He has left side weakness and mobility issues,...
