My hubby is 51 and was diagnosed in November 24. No surgery due to where it is,right sided weakness and brain train on left side. Hes had 6 weeks radio mon to Friday alongside a chemo tablet everyday fif 6 weeks he's on a break till next chemo for 5 days and 3 weeks off.
We shated everything housework, shopping andbills etc, he was the driver. I have been working full time but it's all too much am struggling so bad with working and doing majority of things now even learning DIY with his guidance and feel guilty and not sure what his future holds or what his journey will be. Seen some improvements with him holding a knife again and a pen to write- he's right handed.
Hi Chucky
a warm welcome to the group. So sorry to hear about your husband's diagnosis. Life is too cruel.
I can empathise with what you are going through. I supported my late husband through the 3 years of his Glioblastoma journey. He was 50 when he was first diagnosed. You can read the gist of our tale in my profile bio.
It an emotional rollercoaster ride for all involved and it is difficult to find a balance that works for everyone. I worked fulltime throughout G's journey but was fortunate that I could work from home and my employer was supportive of time off for appointments etc. Sometimes keeping working is good as it gives you a bit of normality in your day but I get that that depends on your job.
This journey will be whatever it is meant to be. Everyone's journey is different. This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now take each day as it comes. Don't be too hard on yourself. There will be days that are just too overwhelming but they pass.
I'm sending you a huge virtual hug and lots of strength
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
thanks, Chucky.
I have written a few community blogs for MacMillan over the past few years. These two might help a bit just now.
Caring for a partner with a brain tumour – a Community member’s story - Macmillan Online Community
“I’m fine”: how do you really cope as a carer? - Macmillan Online Community
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
