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Hi, my first post on here since my recent diagnosis of Low-grade, Stage 3 Non-Hodgkin Follicular Lymphoma in May 2024. After an initial mis-diagnosis of breast cancer back in March and subsequent change, it’s taken several months to get my head around...
Hello all I was diagnosed in Dec 2023 with Follicular Lymphoma stage 4. I’ve had 4 treatments of Rituximab, last one was 1st Feb.Results of my post treatment PET CT indicate I am in remission, I do still have a reduced size swelling under my jaw which...
Good morning, I have just been diagnosed with Follicular Lymphoma. I have a small lump in my neck and feel fine but the news has been a shock. I don’t feel particularly scared, angry or worried but I might be naive. My immediate concern has been to...
Hi Guys Just wanted to drop a line on here just to keep in touch with the group. I've now completed cycle 3 and just had my blood tests for cycle 4. So far the treatment has been smooth sailing. I had a very low heart rate on cycle 1 but got reassurance...
Hi everyone, My parent has recently been diagnosed with FNHL, I believe stage 3 as it is both below and above the diaphragm. They are due to have a PET scan over the next few weeks, I think this will give us a clearer picture. I know everyone's journey...
My husband will be starting chemo soon and wondered if anyone has had this treatment. Have waited months following scans and bone marrow results to get to this stage. He’s a bit apprehensive but eager to start treatment. Was diagnosed in 2021. Currently...
hi, did anyone experience painful legs, ankles and feet. I have follicular lymphoma and have lymph nodes swollen up in my groin, neck, abdomen and around my spleen, starting treatment next week with a course of rituximab, I’ve recently got very achy...
Hi Friends, thought its about time i checked in with you all! I hope you are all doing great on your individual journeys! Mention to The highlander, GLANN, TKJEDI, you were all kind enough to write to me when i was diagnosed, which helped enormously!...
It’s almost 4 years since my diagnosis and treatment, but I’m still not clear about where it goes from here.
Hi all, new here…i’ve been diagnosed with non hodgkins follicular lymphoma, my first treatment is in 3wks. My lymph nodes are very swollen, in neck, armpits, groin, abdomen and around spleen, so quite a lot. Ive been experiencing bouts of excruciating...
