Hello all
I was diagnosed in Dec 2023 with Follicular Lymphoma stage 4. I’ve had 4 treatments of Rituximab, last one was 1st Feb.Results of my post treatment PET CT indicate I am in remission, I do still have a reduced size swelling under my jaw which causes discomfort when I swallow. I did mention this to my Dr and she didn’t seem overly concerned. I am concerned and wondered if anyone on this forum has had anything similar with their diagnosis or condition. I don’t want to appear paranoid but to me I’m not sure if it’s ok to have discomfort from a swelling and not be worried. I was diagnosed with swellings in my groin, armpit under my jaw, lessons on my ribs and pelvis the only swelling that I can now feel post treatment is the one under my jaw, left side which is uncomfortable when I swallow I wonder if anyone on the site has ever been offered for example radiotherapy on one swelling post Rituximab or similar treatment to address one such swelling
thanks in advance
Karen
Hi again Karen14 and we’ll done getting through your treatment.
I have a different type of NHL but I had a brick sized growth and in my neck…… I am now 10 years past that treatment…… but I am left with scar tissue and a lump where my mass was and permanent muscle and nerve damage……. But I have not required any further treatment in that area…… I still have pain the area from time to time due to the nerve damage but the more active I am the less the pain is.
I did have to go on and have 2 Allo (donor) SCTs as my remission was not going to last but I am now 8.5 years out from my second SCT and getting on with life.
