Back to Haematology with a problem

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Hi again,

I'm not really new here, just rusty.  I had a diagnosis of Grade 4 FL about 6 years ago, completed 6 rounds of bendamustine and rituximab just before the pandemic. No maintenence, partly not needed, partly because of severe allergy to rituximab. Mu immunity was and still is very poor, so I'm careful and prefer to be outdoors or masked in crowds.  I've had a few infections despite taking care to avoid them. 

It's been otherwise fine for the last 5 years until this year.  My exercise tolerance is rubbish, even for a 75 year old.  I get out of breath walking up the disabled access ramp into Big City Hospital and to the uphill car park at Small Town Hospital.  So, I went back to the gym and tried to build a bit of strength and stamina.  After several months, I'm getting nowhere with my programme despite effort and now I have a new swollen lymph node in my neck.  It was pea sized about a week ago, but now it's a bean.

So, back to my excellent consultant team...

Cecren

  • Hi again  let’s look for a simple answer for your swollen lymph node in my neck….. I have had the same on and off over the past 10 years post my last treatment but nothing has ever been found.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thanks Mike!  I know this thing can be weird.  I guess it's just the combination with my general condition of fatigue which makes me twitchy about lumps.  I have a 6 month check due later this Autumn, so that'll be a chance to discuss how I'm doing. 

    Cecreen

  • If the lump is changing/growing I would be getting in contact with your team and talk this through……

    They may take your appointment forward…… let’s face it, the quicker you get checked out the quicker you can control this be it your Lymphoma and if it’s nothing reduce the stress of thinking about it ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thanks for the hugs!  I'm being a bit cagey about it because my husband frets and one twitchy person per household is enough. 

    I rang the Unit and left a message for my consultant so that any extra stuff could be organised before the scheduled appointment.  I feel better knowing they know!

    Back to the gardening.  And don't you find the prospect of possible more treatment makes you want to tidy your cupboards?  Sort of prepping urge...

    Cecren