hi, did anyone experience painful legs, ankles and feet. I have follicular lymphoma and have lymph nodes swollen up in my groin, neck, abdomen and around my spleen, starting treatment next week with a course of rituximab, I’ve recently got very achy...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Almost a million more people (900,000) will become eligible for a shingles vaccination from September, the NHS announced today. Anyone who is severely immunosuppressed and over 50 will be able to get two doses of the Shingrix vaccine – currently the...
Has anyone suffered from vertigo after stopping chemo. I have been told it's anxiety as all scans were OK. I'm not an anxious person and I was very upset at being told that . I have had it in the past.
I was diagnosed with low grade follicular Lymphoma almost a year ago now. I’m on watch and wait. I feel perfectly fine apart from tiredness occasionally and anxiety now and again. I am stage 3 and when it’s time for my 3 monthly catch-up with the oncologist...
Hi All I've recently been diagnosed with stage 4 follicular lymphoma. I'm 54 and in otherwise good health so quite a shock. So many concerns, questions and loads of confusing information on the web. My platelet count is low so I'm now told...
Hello I had my first Chemotherapy on Wednesday and was wondering what fruit is ok to eat I know for my treatment I'm not to eat grapefruit any advice would be much appreciated
Hi people, I’ve not posted much in the last few months as nothing much has changed. My husband has FNHL, found last year on a CT scan for his kidney cancer, he was just about to start 12 sessions of radiotherapy when they see on his PET scan something...
Him I had 6 cycles of r chop in 2018. Unsuccessful. SCT in 2019. Now relapsed. Have just started on 3 cycles of prednisone and rituximab. I was informed that a person can only have 1 course treatment of r chop in their lifetime. Would this be...
About to start 2 years rituximab for fnhl, anyone out there been through this regime? if so how did it go Many thanks for any info Ruby
