Starting Treatment 27th December 2018

Former Member
Former Member
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Hi

Have been diagnosed and starting treatment after Boxing Day they are using R-CHOP treatment my cancer is in my stomach and spread to the chest they tell me that is quite common with this form of F Lymphoma

They tell me my first chemo session will last between 6 and 7 hrs and I will be stopping in hospital for at least overnight then I will have Chemo as an outpatient in three 3 week cycles

Just wondered if anyone can give me an idea of what to expect I know the hair loss etc just wondered how I will be feeling in the days after treatment

Any useful information for me and my wife we would be grateful

  • Former Member
    Former Member in reply to Former Member

    Hi Fred,

    Not the news that you wanted but far better to be safe than sorry. With any luck the PET scan will reveal that it is just scar tissue and nothing to worry about. 

    However if not, as you say the treatment seems to have killed most of it which is a positive. With any luck they can just zap the remaining bits quickly.

    When are you having the PET scan? Hopefully soon. 

    Peter,

    Sorry to hear that your doctor was dismissive - makes things a lot harder. Hopefully your next appointment will be smoother.

    Hang on in there both of you. 

    Nicky Smiley

  • Former Member
    Former Member in reply to Former Member

    Hi Nicky

    PET scan will be 7 to 10 days my Doctor said but my cancer nurse said it maybe up to 14 days if they are still catching up after the bank holidays and  I should know the results the Wednesday after the scan that is when they have their meetings to discuss the results and treatment needed

    Slowly coming to terms things and I know it could be a lot worse, many on here going through a lot worse 

    All the best to you and hope you get the results we all want, take care

  • Former Member
    Former Member in reply to Former Member

    Hi Fred,

    Mine was a PET/CT scan last Tuesday but not expecting results for about another week. Just keeping my fingers crossed Fingers crossed tone1

    Hope that they get you booked in soon and the results are clearer. 

    Take care and hang on in there. 

    Nicky Smiley

  • Former Member
    Former Member in reply to Former Member

    Yes Nicky should have said a PET/CT scan it's at Cambridge a 2hr journey for us 

    I'll keep my fingers crossed for you and wish you all the best

  • Former Member
    Former Member in reply to Former Member

    Hello Nicky,

    Hope all is well with you and thanks for the comment, which I will talk about with my nurse.

  • Hi Fred, just see it as a stall, false positives happen when scar tissue confuses the picture, it happened to me 9 years ago and many others have posted similar since, so fingers crossed thats what it is. 

    John 

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are

  • Former Member
    Former Member in reply to Former Member

    I’m so sorry to hear this. More waiting!!!  Hopefully the shadows are just bits of scar tissue. 

    Wayne

  • Former Member
    Former Member in reply to Former Member

    Hang in there Peter!  Too bad your doctor needs to work on his communication skills!  If I remember correctly your old ones were pretty good.  Wayne

  • Former Member
    Former Member in reply to Former Member

    Right guys and gals after yesterday I need to get back on track and focus on the positives 

    With my birthday being tomorrow give me some ideas to shake me out this gloom 

    Sorry to be on a downer I am really trying to be positive 

    Cheers to all you on here you help more than you know

  • Former Member
    Former Member in reply to Former Member

    Well many happy returns for tomorrow Fred, I have a special G&T on my birthday, with lots of fruit in it. Go out for dinner with your loved ones or how about a bbq if the weather is good, nothing to beat the buzz of eating outside and your dogs will love it as well.