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Hi, I have recently been diagnosed with a amelanotic choroidal melanoma in my left eye, I’m traveling to London in 2 weeks to undergo plaque radiotherapy. Has anyone had this that could tell me what it was like ie did it hurt or uncomfortable and did...
Can anyone recommend ancologist
Haven't been on here in quite a long time, but felt that I just wanted to write something! Went to Liverpool hospital yesterday, and was told that I would need more mitomycin drops... anyone else had those? This will be my 6th course, over the last 12...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hello everyone. I have been diagnosed with choroid melomona not long ago and still trying to get my head round it. I go into Moorfield hospital next week to have clasps fitted then in Nov I have to go to Liverpool and have a proton Beam treatment. I Gota...
I had proton beam in February 2021 and as it was close to the optic nerve my vision in that eye has been deteriorating until last week my eyelid has been been very tender for most of the last week and the last few mornings i have needed to bath it...
Hello everyone. The last 3 weeks have been the hardest in my life. 3 weeks ago optician noticed something in my eye, sent me to A&E who referred me to Moorfields where they confirmed I had a large uveal melanoma in my right eye. 10 days later, on...
Just last week I was diagnosed with a tumour in my left eye & in 3 weeks time I have to have my eye removed, I am also waiting for an appointment for a body scan, I have lots of support from my husband and family, but feel so overwhelmed at times, I only...
Hi all , I have just been diagnosed with Iris melanoma , I wasn’t given much information apart from I will go to clatterbridge for proton beam therapy over 5 days and that’s it , follow up for 2 years at Liverpool . I wasn’t told a stage , a prognosis...
Hey, i've been advised to have this treatment but i'm getting married soon and hope to have a family, Does anyone know how long after having this treatment it's safe to have a baby? Thanks
