Hello everyone.
The last 3 weeks have been the hardest in my life.
3 weeks ago optician noticed something in my eye, sent me to A&E who referred me to Moorfields where they confirmed I had a large uveal melanoma in my right eye. 10 days later, on Monday they removed my eye. I'm at home now recovering and trying to get my head around what happened in the last 3 weeks...
I think overall I'm doing OK but it is extremely hard. I haven't only lost an eye but now am extremely nervous about the future and I'm finding it hard to keep my anxiety in control. I had my 1st CT scan yesterday and although they didn't tell me anything about the results at all, I went through a minor panick attack.
Is this something that others experience too? Does it get easier as the months pass?
I also wanted to ask some more practical questions about eye removal and adaptation to new reality. At Moorfields I feel they downplay the impact significantly. The only discussion I had with anyone there was the consultant saying I can do pretty much anything with just one eye, can drive, swim, etc. No information or support given about the challenges I might face as I adapt.
6 days after I lost my eye I still feel anxious leaving the house and can't imagine ever again being in a crowded place on my own, let alone driving. I feel the my good eye is not seeing as well as it used to, sometimes my vision goes blurry and I find it difficult to lift my gaze or look around(because my removed eye is sore when I move my eye around). My good eye get tired and I find myself closing my eyes often gor a rest.
Us this normal? Did anyone else go through this?
How long is the adaptation? Did you receive any support with this adaptation process? I keep thinking that there should be advice out there about what to expect, what you can do to help, exercises gor your eye and brain to help the adaptation...
If anyone has any tips I would be very grateful.
Thank you.
