weird

Hi Chocolategirl

I'm just 'bumping' your post as I noticed that no one had replied yet.

Have you spoken to your CNS about your tender eyelid?

x

hello i’m sorry to hear about your eye lid. How is your eye sight now ? i had my proton beam therapy in March 2022. My tumour was touching my optic nerve. i have been told to expect total sight loss in that eye. So far so good. Did it take a long time to change? I hope you are keeping well and good luck. 

Hello walking50

My eyelid developed  into quite a saga.

I went to a pharmacy hoping they could give me some cream  for it. She said it was an insect bite and told me to contact to my GP. i had to get my mum to ring as with our surgery  you start trying to ring at 8.30 and hope you get through - often if you do get through  you could be told there are no appointments available and to ring back the next day and the next day etc - not great if you are working. my mum did get speaking to a nurse who suggested the local minor injuries  department.

this too works on a try to get through basis - i did get through - no appointments - try going up to A&E - with 12+ hours waiting time - no thanks.

i then found out  that Specsavers over a triage service so got an appointment there. He said yes probably a bite and to use hot & cold compresses on it and to dab on a very gentle moisturiser. he also for his own interest (you will find opticians love our eyes) did a free OCT scan and rather worryingly said there was fluid in the eye and said he would send a report to the hospital but as i was due a check up in September they could check it then.

No September appointment appeared so i rang the hospital last week to be told they are running 2 months behind so i am left with my old condition unchecked and a new issue unseen.  

Others on here would say speak to your nurse or your consultant - i have neither .the only nurse i saw when last at the hospital was one that put dilating drops in and then vanished and the doctor - who could have been a consultant was of the next please variety - problem is there are no ocular oncologists in Belfast.  

AS for my eye sight  it was the deterioration that sent me to the optician in the first place - I'm not sure just how much worse my sight is since that. it is as though my nose is in the way if i close my good (short sighted eye).

a friend asked why i didn't wear glasses the whole time was it because they were varifocal - I said my glasses weren't but my eye was.