CML

Hi  I am Mike Thehighlander and I am dropping in past from our NHL group just to say welcome.

I am sure that some of the CML folks will pick up on your post soon.

It would be good to know a little about your journey so far like treatments etc

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

Always around to chat.

Hello highlander, my journey started in 1998 I was 42. Finding out that I had CML didn't shock me. I was very matter of fact. First step was bone marrow biopsy.  My first course of treatment was interferon injections which I had for 18 months. 

In September 2001 I was put in imatinib at the end of it's trial dosage was 800mg.  I  have been on it ever since as it suits my body. 

Each person's journey is going to be different.  We can support one another. 

Hi again, yes a blood cancer journey can be a life long ‘adventure’

I was diagnosed with my rare Skin Non Hodgkin’s Lymphoma back in 1999..... so understand what a 20+ year journey can be like.... my condition remained ‘reasonably’ manageable for the first 14 years but as it became aggressive the treatment had to mirror this (see my profile)

Let’s see if any of the 200 group members are looking in so you can compare notes,