I have just been diagnosed with chronic myeloid luekeamia and am feeling very confused. I keep thinking someone will phone to tell me this has all been terrible mistake. I feel lime my body has betrayed me. I am struggling to get my head round this diagnosis and although though I have children and a supportive family I feel very alone.
Hi brainyscarecrow1 and welcome to this corner of the Community although I am sorry to see you joining the community………. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of T-Cell Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive type of T-Cell Non Hodgkin’s Lymphoma was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of navigating this journey rather well.
CML is on the rare side, but let’s look for any group members to pick up on your post and get back to you.
You can also click on the main ‘CML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a person with CML in it so worth checking.
Always around to help more or just to chat.
Thank you. I’m just learning how to navigate these sites and finding it a little difficult. I find myself worrying that I won’t be able to find it again 
Hi brainyscarecrow1 the simplest way to find ‘your’ activity/posts in the Community is to click on ‘your’ community name this will take you to the groups you have joined…..
Near the top of ‘your’ page click on ‘More’ then ‘Activity’ and this will bring up all he discussion threads you have put up on the site but also any threads you have interacted with.
