Hi, I have TNBC mets in the lung which is stable at the moment. I took Capecitabine for three years before it stopped working and am now having Trodelvy. I have just had my 13th round. I shouldn’t complain as I don’t have too many side effects, no sickness, only occasional diarrhoea, numbness in my right foot and left leg and hair loss but after the last round I’ve found it hard to feel positive. The filgrastim injections seem to wipe me out, a lot of pain for several days although my dose has changed from five to three. Can anyone tell me whether the side effects get worse the more rounds you have?
Many thanks
Hi K8GAR
Welcome to the community although I am sorry you have needed to join. I am one of the community champions and I have been living with metastatic tnbc since 2022. I am delighted Trodelvy is keeping you stable. I don’t have personal experience of Trodelvy although it will be my next line of treatment if/when I need it. The side effects you are having seem consistent with what I have heard and I can imagine it’s a tough journey even if the side effects aren’t too bad. I have had filgrastim alongside other treatments and I think it was the treatment aspect I most hated as it did cause an awful lot of bone pain. Unfortunately with a treatment that hits your white blood cells, it’s really necessary. It does sound better to only have to suffer from it 3 days each cycle. It’s difficult to stay positive when you know these treatments are there to slow the cancer down, but can’t cure it. Hang on in there.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
