Breast cancer mets

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Hi 

Ive just joined this group after a diagnosis of breast cancer mets to my bones and lung pleura .

I am taking Ribociclib and Fulvestrant and will be having bone strengthening injections introduced soon.

My liver is not coping on Ribo and has shot up to 66 , the consultant is keeping an eye on this but it's all just overwhelming and worrying . 

I take two tablets a day reduced from three due to neutropenia . Now it might be reduced to one .

My anxiety is through the roof . 

I am 49 with 2 adult children and I work for the health visiting team . I just want this to be a bad dream !

I hope I can find friends on here to chat with . 

Bev x

  • Hi  

    I am sorry you have mets and are not coping well with the treatment. I hope they can get the balance right for you. Are you recently diagnosed? I found I had mets in my liver not long after I had got a primary diagnosis following a routine mammogram. I remember the shock of it all as well as the surreal nature of going from thinking I was healthy to feeling my days were numbered in a short space of time. That was all in 2022. My cancer is tnbc so treatments are different, and I have no experience of your drug cocktail. But I also have had significant treatment issues along the way. If you click on my name you can read my story. Anyway, welcome to this community. Try to retain hope - metastatic breast cancer is a lot more treatable than it was a few years ago. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Thank you for responding .

    In 2018 I was diagnosed with ER positive breast cancer and had adjuvant chemotherapy,radiotherapy, a mastectomy, followed by tamoxifen then changed to exemestane .

    It came back May 2026, I have arthritis too and the mets were  picked up by rheumatology doing an X-ray .

    I was hoping that I would get on okay with the Ribo and be able to bob along for longer than this, but there always seems to be one thing after another and it's just so hard .

    I go on holiday on Saturday and it's my week off meds so i'm hoping to sit back and enjoy but everything is like a big grey cloud . 

    Im usually so positive - suppose im having 'one of those days'

  • I hope you can enjoy your holiday. I am not on treatment at the moment but I did always find it helpful to organise something during those weeks off.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • I'm so glad you're not on treatment , are you primary cancer ?