Breast cancer mets to lungs and brain. Feeling hopeless.

Hi Ellejaystrong

Welcome to the forum.  I'm Daisy53 one of the Community Champions on this site.  While I don't have the experience you are looking for I noticed that you haven't had any answers yet so I thought I'd reply to you to welcome you to the Community.  Hopefully someone will be along shortly with an answer for you.

Best wishes

Daisy53

Hi there, sorry to hear your diagnosis. 

I just wanted to say, while I don't have brain mets,  I do have lung mets since 2021.  I was treated with 12 weeks of Taxol combined with herceptin and perjeta every 3 weeks, which I am still receiving and will indefinitely.  It took a good while but my mets eventually shrunk and on my last scan were not visible. I'm due another scan shortly so I'm keeping my fingers crossed. I was also 44 with two young sons when first diagnosed so I understand your feelings. I hope I have given you some decent information and I wish you the best of luck with your treatment. 

Laura

Hi I had a small but aggressive lump removed in February stage one grade 3 I had an oncotype score of 79 which my consultant said was rare I had lymph nodes removed which was clear and clear margins around lump removed I start my chemo in may im very concerned with my score so I am going to try alternative treatment and my chemo 

HI, I was diagnosed with with Lobular BC in Nov 2021, 2022 was a year of various treatments, chemo, bilateral mastectomy, radiotherapy, immunotherapy and targeted therapy, I was due to have Zometa for 3 years at 6 monthly intervals and was due to go back to work in April 2023 but in March 23 (2 days after my last treatment) I found I also had brain and lung mets……devastating news and could only think the worse, so now stage 4, palliative treatment with Enhertu every 3 weeks, I’m just past 3 years on it now and despite everything I have read it has been very kind and gentle to me and is doing is job well. I count my blessings every single day, 3 years ago I didn’t dare look this far ahead but I lead a very full, active and social life. I really do wish you well and hope your treatment does its job well and is kind to you too. Sending virtual hugs and hoping my positive post will give you positive thoughts for the future too.