Secondary Mets from breast to Liver

Hi LJR 

I am sorry you have developed liver mets. I had liver mets too although mine were isolated and I was able to have ablation after systemic treatment and have reached a stable remission. I don’t know whether my treatment pathway would be relevant to you as I have TNBC. Certainly if you have an oestrogen driven cancer there are lots of treatments and many oncologists regard it as a chronic condition to be managed. I have a friend who has been stage 4 for many years and is on her 17th line of treatment - if only there were 17 lines of treatment for my cancer!

I never asked for a prognosis as I felt it would be like having a use by date stamped across my brain. I was however aware it was a serious position to be in so took practical steps to make sure my will was up to date, that I had power of attorney set up, and that my loved ones knew my wishes. My primary cancer was early 2022 and was probably de novo metastatic. But I am still here.

Thank you so much for your considerate reply. I too am considering the legal steps I need to take. I keep thinking that if I pass, and something happens to my husband my children will have no one, they will be orphaned and that is destroying me. I am finding that my brain is jumping to death as opposed to being able to focus on the fact that this is treatable to allow time, I’m panicking. Mine is oestrogen driven. 
something else I am panicking about is that I have since 2021 been treated privately. We are no longer in a position to carry this on, I was paying £850 per month but it would go past £1000 at renewal this month, and I am very uncertain as to how effective the NHS is with treatment as you only hear of horror stories, not the amazing standard of care that I’m sure is out there, it just adds to a level of uncertainty 

Hi LJR I have secondary breast cancer which has now gone to my bones in my spine . I was diagnosed last year two days before my mum passed away so it was a very hard time for me.  mine also is oestrogen driven . I am under the NHS like you I was worried about the level of care I would receive. So far it has been brilliant I am on letrozole hormone blocker and Palbociclib I have had Pet ct scan every 3 months  please don’t worry about the nhs . You don’t need that worry on top of everything else I wish you all the best on your journey xxx 

The NHS is very good at cancer care, my treatment has been exemplary. 

Thank you for for offering some reassurance, I appreciate it. A am so very sorry to hear of what you went through last year with learning of that diagnosis and losing your mum

I am reassured by this, thank you

Thank you . I do understand your worries as when I had my first fight with cancer 16 years ago I was so scared of going with the nhs . So I also went private had a lumpectomy. But I found that it was quite cold no empathy  . I was very scared and didn’t know what to do my brain was all over the place  . They never gave me a choice of lumpectomy or full removal they just went in for lumpectomy. Looking back now I wish they had given me that choice as I would of gone for mastectomy and maybe I wouldn’t of been in this situation now hindsight is great . but its to late now and we all have to just live life to the fullest make some beautiful memories with our families. I am not going to let it me hold me back I grab every moment now  . Don’t get me wrong I was a complete wreck last year I was diagnosed in the February. And I thought that was it for me I had all things going around in my head that I wasn’t going to see Christmas wasn’t going to  see my granddaughter year her first birthday she was born 6 days before my diagnosis again I was scared to stay with the nhs ,  but honestly I have a very lovely team from the nursing to the oncologist  I go every four weeks for denosumab injection . Best wishes️️

Thank you for such encouraging words, I’m so pleased that your experience has been a positive one ️