Just wondering if anyone has had an experience similar to mine...I've been on pembrozilamab every 6 weeks and nab paclitaxel 3 weekly then 1 week off for the last 2 years, my consultant informed me that funding for immunotherapy only lasted for 2 years so I would just be on nab paclitaxel, this was beginning of March, he then told me on my next chat with him i would be moving on to 3 weekly treatment but never mentioned a change in dosage, I went on the Wednesday before good Friday to be told I was starting a new regime but that it was the same dosage as usual ( this was my week 3 before my break) by Friday I felt absolutely shocking like i had flu or even covid, I ached so much, I battled through till after the bank holiday and contacted the clinic to be told I'd had a dosage of 450mg on top of the 2 x 180mg which was the dose I was previously on , im still feeling weak and my muscles don't have any strength, I was doing really well before, stable scans and living almost normally , now im worried this is how it's going to be !
I was on a regime of pembro every 3 weeks with NAB-Paclitaxel 3 weeks on, 1 week off for about 5 months, until I had a serious reaction to the pembro and had to stop treatment. It had been my understanding that if this had not happened, I would have moved to 6 weekly pembro without the nab-Paclitaxel until I reached the 2 year point.
I find it surprising they have changed your nab-Paclitaxel dosage and I think it’s worth querying it with your oncologist.
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