Side effects Ribociclib

Thank you for this it sounds worth trying 

Where do you purchase the oil from and is it the pure oil.

I now have areas of bald patches and my hair has thinned a lot 

Doreen.

Hello. I’m having my first review next week and your positive story has really given me hope. I’ve been on letrozole and Ribo for four months, following de novo diagnosis of bone mets (pelvis only). My pain has really subsided and I sometimes forget all about it. I hope this is a good sign. Did you notice changes in pain? 

Hi Doreen, supermarkets or health shops. It’s the same stuff you cook with. I go for organic, non refined stuff- it doesn’t cost much and lasts ages. 
I pop it on my scalp and through hair about half hour before washing it. Sometimes I leave in overnight. I shampoo it out twice as it can build up. Infact I’m using a swimming conditioner as it’s great for getting it out and I only tend to wash my hair post swim. 

I have long hair and use a few teaspoons worth. It melts in your hand or soften my microwaving for a few seconds  

I also put the tiniest bit on my eyebrows before bed each night and I think it’s helping retain hair there too. 

I hope it helps. 

Thank you for your reply.

Will certainly give it a try.

Doreen.

Hi there, I start Ribociclib this week. My hair is already so thin. I'm really hoping there aren't too many side effects and I can get back to work in the new year. 

Would really appreciate anything else you can tell me?

My breast cancer is in my liver for now. Getting a bone scan tomorrow. Such a worry and the waiting is torture. I'm still numb about my diagnosis.

Take care of yourself. 

I have nausea from the Ribociclib but take meds for that everyday.

Hair thinning is side effect of the drug.

See previous post in what I'm using for that.

Haven't seen any improvement in my hair so I wouldn't spend too much on products.

I also have Lupus so that adds to side effects.

I hope you do well on it.

So far my tumours haven't grown.

My next scan is January. 

It never gets any easier waiting  on results. 

Hello. I know the feeling of numbness and fear in the weeks after diagnosis. It is all overwhelming. I’ve been on Ribo and letrozole since August. My scan late Nov showed regression in my  tumors (pelvic bone only). The drugs are working! I feel fine - minimal pain (paracetamol manages it) and I’m just getting on with life. I have no real side effects from the Ribo. Like you, my hair’s not great anyway so I was worried but it’s not been affected. I get my highlights etc as normal but use olaplex and similar products. Who knows if they make a difference. 
I know you’ll be terrified and desperately sad now but there is hope. You will look back in a few months and wonder how you coped - but you will. Good luck and keep us posted. 

Good luck for your next scans

So good to hear such positivity and that there is hope, thank you and all the best to you too

Hi Caroline,

I have the same type of Secondary breast cancer and same treatment Ribociclib + Fulvestrant. I'm also new to the forums. Not sure how the forum works so any advice would be lovely. Also, would you mind telling me if you have experienced any heartburn?. I currently have a massive pain and burn feeling in my stomach and I read that omeprazole/lansoprazole/esomeprazole interfere with the effectiveness of the Ribociclib, so I'm looking for advice on alternative medications/natural ways to tackle that pain from any of the lovely ladies from this forum.

Thank you!