The waiting is torture :(

Hi Sheelagh

• thanks for contacting me. Would love to keep in touch. I don't know anyone who's had brest cancer around me.  That's why came on here last wk. To see if could to chat to anyone who can give advice/support. My family & husband are very supportive but they just don't realise how much it effects you. Fingers  crossed for wed that you get your plan sorted. and hopefully not in your other brest too.. 

My MRI results showed my cancer is alot larger than first expected. So they think it's been there alot longer. I have to have a CT scan  8.30 am Sunday to see if it's spread to any other parts of my body.so know even more worried it may have spread. They just said if it has spread we will deal with the breast  cancer first.   Like you I just want to know.   

You must check out Lobular Breast Cancer .org.uk i found them yest. It was very helpful. Made me understand  alot better about Lobular cancer .There is a video from a doctor that really explains well Lobular cancer. 

I don't know about you but as soon  as told it was cancer I didn't hear alot of what else was said, as was just in shock.   Except for a changed in my nipple on 2nd June. I  have no other symptoms. I don't feel ill.  So it's hard to grasp that the  cancer is actually there.  Did you have any symptoms.? As lobular is hard to detect .  I have since been told   

Sorry for the long message. Just good to get things out. Look forward to hearing from you.

Take care & all the best Dee xx 

Hi again,  I am keeping my fingers crossed for you on Sunday.  Do you know how long you have to wait for results ?  Must be torturous for you.  I discovered a lump in my left breast on my 70th birthday.  Like you once I heard the word cancer I switched off.  Luckily I had a good friend with me who took it all in, asked questions etc.  I find it very difficult to process as I don’t feel unwell in any way.  My daughters and friends have been supportive but I find myself playing it down for them.  Maybe this will change when all results are in and I have a treatment plan.  I know I have it but it’s like it’s not real if that makes sense.  It’s so good to talk on here and share our journeys .  
Thinking of you

Sheelagh x

Morning Dee,

Sorry you're going through more tests, waiting and worrying. I really hope the CT is clear and you can have your surgery.

I'm glad they do all these tests to get an accurate diagnosis but the waiting in between is excruciating. I thought they might have scheduled an MRI/CT scan straight away after my biopsy but as it's all staggered to save unnecessary tests, it gets too stretched out.

My cousin had hers done privately at the same NHS hospital site as me, with one of the same consultants as the my NHS team. She has private medical insurance. She had her biopsies, MRI and op within a week. Luckily hers hadn't spread. So she had less time to worry. She's a bit worried they are taking a longer time with me.

I had my MRI yesterday. How much bigger did the MRI show yours to be? 

Wishing you the very best outcome tomorrow Dee.

Yes I had a 2 week wait in Jan but once they told me 90% chance it’s cancer I went into met down. I got news 100% on 4/2/25 and by then it wasn’t a shock. I lost a stone in weight with worry in the 2 weeks wait. I can honestly say once you go back they will have a plan ready (tailored to your cancer) and for me I was in for surgery 5/3/25 and am currently under going chemo then radio at the end if this. You will feel much better once you know a plan as you can start the long journey! I don’t look back I keep moving forward now!

Until you have that appointment it’s awful and I’m 49 so cannot imagine how you feel with a young family

Thanks for sharing your story, yes I have really fallen to pieces during the agonising wait to find out what the journey looks like :( 

I finally have my results appointment this afternoon, *23 days* after being told they're pretty sure it's cancer at the time of taking the biopsies!! It has been an awful, overwhelming time. Hopefully I will feel a bit better this afternoon after being armed with some more information.

I hope you are doing well and the chemo is bearable xx

Good luck for your appointment and I did cry at the appointment but I came away thinking at least they are doing something and so many people survive this so I felt I had to keep positive.

im doing ok on chemo and it’s hard but not as bad as expected. I’ve used the cold cap and I’ve just had 4 of 6 and with a head band / cap still look like me. 
its not easy but as I say keep looking forward not back and you can tick off each treatment / op as well that’s all done now.

I’ve met some as young as 32 on chemo (scary)!