The waiting is torture :(

Thanks, I'm doing ok NVR. 

My op is on the 3rd July. I have my prep appointment tomorrow and I will go in again on the 2nd July for them to inject me with the radioactive dye in order to scan me to detect the nodes. 

Feeling ok at the mo and have a couple of days off work beforehand to get ready. x

Hi

It isn’t easy waiting, as has already been mentioned, if it is cancer things will move really quickly.

I was diagnosed in early January but had to wait all through Christmas for my results, as soon as we got them, my plan was in place and I stared chemo by the end of January.

As difficult as it is, try and stay positive and I’m sure your 3 year old will keep you occupied.

Beat wishes

Hi NVR 

As others have already said, the waiting part is the worst by far. I almost guarantee you will feel better when you have your treatment plan.

I just want to add a word of caution, though, that things can change along the way even when the diagnosis is confirmed and plan given. I had surgery scheduled then MRI showed up some more stuff so it was delayed while testing was done. Then there was disagreement at MDT about how to progress which meant surgery was postponed a second time (I’d even had the pre-op and signed consent). It was excruciating and life seemed to grind to a halt, so I understand where you are. I know it’s easy for me to say now, but try and carry on as normal. I cancelled a holiday and a running event and was gutted about that, turned out I could have done both. Annoying in hindsight.

You'll get there. x 

Wise words of advice, thank you. I do appreciate everyone's solidarity - at least I know it's not me going crazy finding the waiting / not knowing unbearable! Hope you are doing well xx

Definitely not going crazy! 

I am doing really well, thanks. Last year it would have been unimaginable to say but I’ve never been better! Although it was horrible at the time, the benefit of the delays I described are that I ended up with the right treatment with the best possible outcomes. x

Hi, it doesn’t matter what anyone says , the wait in my experience, was the worst part of it all. What you do not know you tend to make up in your own head and go down the rabbit hole. Once you get your results , you will feel better although still scared. You will have your op and a treatment plan is put in place. Just remember, after your op, the treatment is all about prevention. 
I hope this helps, stay strong and good luck

Thank you - excruciating is a really accurate description of how I'm finding this ....

I did speak to the breast clinic today and the receptionist said she would get someone to call me today with an update on rough estimate for results appointment, but I guess I won't hear today either as it's now gone 6pm and I just find the wait unbearable. 

I'm ploughing on as normal as best I can but I feel so tightly wound all the time, my head is spinning and I'm hardly sleeping, so I don't feel myself at all :(  xx

Really positive to read, thank you and I'm glad you are feeling great! Xx

Thank you, it does help to have solidarity - it sounds like everyone found this part ️of the process torture, but hopeful that everyone says it feels a little lighter once you finally get your plan xx

Hi Dee,  I am in exactly the same position as you.  Diagnosed a few weeks ago with Stage 2 Lobular Breast Cancer.  Have since had an MRI and another biopsy on the other breast.  Now need another MRI which I’m not looking forward to.  Feels like I’m standing still waiting for treatment plan.  They said I will need surgery first and I just want to get on with it.  The team meet again next Wed and I hope I get my plan then .Like you it’s constantly on my mind and anxiety levels are high.  On the other hand it doesn’t seem real.  Would love to keep in touch and see how you get on.  

Sheelagh x