The waiting is torture :(

I was 35 with a 12 year old when I was confirmed to have TNBC. 
When the plan is put together. It’ll all go off - you’ll have appointments coming out of your ears  
They will come to you when it’s been discussed at MDT 

It may not be cancer yet. I know the waiting is the worst, but hold on in there and keep busy! I went on holiday just to get away xx

Hi I totally understand how your feeling. I dont have children at home anymore. Im 57 I had a biopsy on the 6th of this month. On the 16th was told have stage 2 invasive lobular breast cancer. There still waiting for Some of the tests to come back from pathology HER2 and receptors tests. This will determine my treatment plan. Had a MRI two days ago too.(don't want to go throught that again) 

I cannot sleep, feel sick with worry ,have anxiety chest pains, feel numb, I don't know what im doing most of the time as not with it .cannot drive at the moment as not with it enough. Its on my mind 24/7. . 

The waiting is agonising, im struggling to. Xx 

I found the wait really hard! Those days seemed to go on forever so I really do understand.

I found out I had stage 2 IDC 12 days after my breast biopsy, but then had to wait for a second node biopsy. I was meant to find out on the following Fri via an agreed phone call, however this got shifted to the Mon and then was 2 hours later than scheduled. This was all while I was at work! Never again will I say yes to a phone call instead of face to face.

Once i got a date in the diary for my op I really did feel a bit better, though it then felt more real too.

I know keeping busy to help get through it is tricky, but I guess with a little one you are always busy. I did try and do nice things with friends. 

As others have said once things get going if it is cancer you will receive lots of other dates and at least will have something concrete to focus on xx

Thank you for your reply, gosh the days are sooo long indeed..

Interesting that you felt a little better once your plan was in place, I think that will help me feel a bit more in control of things - it's the fear of the unknown isn't it, until you know exactly what the plan looks like. 

I hope you are doing well? Xx

Bless you, thank you for sharing. It is just awful isn't it - I hope you get a plan in place soon

Similar to you, I'm struggling with sleeping and anxiety levels are very high. Sometimes it helps to just not feel alone in the struggle though, so I appreciate your reply. 

Sending tons of positive vibes your way xx

You are at the hardest stage and once you have a plan you’ll feel more in control. I waited 3 weeks and it felt like torture. It’s totally wrong to make us wait so long, something has to change. Take care x

Thank you, oh 3 weeks for you too - it's too long isn't it   hopefully I will get more news at the end of this week. 

Hope things are going ok for you? Xx

Hi NVR , lovely replies already, agree all the waiting is truly tortuous. The only thing I’d add is to try to focus on the fact that the more knowledge the medics have about your particular cancer (hence waiting for all the results, I think maybe the HER2 one can be the one that holds things up?), the better they can tailor your treatment. Also that the MDT discussion, although also a delaying factor, means your case is considered by a group of experts rather than just one. But I’m sure you know all that! 
Last idea is just about keeping busy which you no doubt are any with a 3 year old. Maybe prep some meals for the freezer in case things move quickly once you have a treatment plan? I didn’t have little ones as I was much older but I tried to prepare stuff at work as I didn’t know how long I might be off. 
Sending love and a big virtual hug, keep off loading here whenever you like! HFxx

Great advice and thank you so much for your kind words xx

Hi. I am similar age, 41 with a 5 year old so know exactly how you feel. 

Time goes quickly, I would try and just carry on with everything as normal and before you know it you will be back for the appointment. I know all these appointments are scary, I hate them but please remember you are not alone, we are all here to chat all the time. 

You will get confirmation of the treatment plan and what type of breast cancer it is at your next appointment and you will feel better then knowing what the plan is. I’ve had mastectomy, lymph node removal and 10 sessions of chemo now (2 to go) so I know how it feels at the beginning waiting for these results xx