Diagnosed this week and worried

  • 7 replies
  • 280 subscribers
  • 332 views

I found a lump and within 3 weeks have a diagnosis of lobular breast cancer. I have an mri to to assess it more before surgery in 5 weeks. There looks like there may be more than the main cancer, 3 more  suspicious areas. 

My head is stuck on why my mammogram 9 months ago didn't get flagged as my clinic letter now says there was an opaque area where the cancer is. The nurse consultant in the 2ww clinic on feeling the lump made me feel awful saying it was just normal tissue and wrote that in the letter to the GP and yet here we are with a diagnosis after biopsy of an indeterminate area. The GP and surgeon can clearly feel the lump which is really obvious. In fact the surgeon can see swelling also.

I am grateful I felt it and went quickly to my GP. I am anxious that it has been growing for months before and after my mammogram.

The plan so far is lumpectomy with surgeon reduce and match both breats, radiotherapy and hormone treatment,

  • Hey I’m just the same as you. My mri next week.. feeling scared too x

  • Hi Tomato, I was same as you only was another lump 18m after initial diagnosis. It was right on the margin of the original lumpectomy Dec 21. I only opted for radiotherapy as no nodes involved and 29% chance of returning. I'd Had a mammogram in Jan 23 which showed nothing. I was told it was just scar tissue when I found it in Jun 23. 6 months later after becoming so breathless could hardly walk to toilet, was told had a chest infection antibiotics didn't help. Ended up with chest xray and found fluid on my lung. Loads of tests later discovered fluid had cancer cells same as original tumour, so malignant plural effusion and also by then small seed like lumps over sane breast. This was cancer under the skin. When I asked why none of this showed up was mammogram only showed up tumour. Result is I now have metatastic breadt cancer.  Have had to have chemo and immunotherapy.  Only managed 2 chemo as so ill, so now only on immunotherapy (herceptin) 3 weekly cycles. But touch wood after 17 cycles all looking OK so will be on it as long as it works.

    I know its all very scary and frustrating when you think you've done everything you should have, but in the end it is what it is and we just have to concentrate on moving forward or we just make ourselves crazy. Take one thing at a time, focus on the next appointment/procedure and dont start think to far ahead. Also your lucky your surgeon is going to match your breasts, I now have 1 G cup and 1 E cup. But on the up side its lovely and pert and doesn't fall down the side when you lay down haha. Sending hugs xxx

  • Katy o, of course you are and it's OK to be scared. As I said to Tomato don't look to far ahead deal with each thing as it comes along then move on to the next step. Hope everything goes well next week. Hugs xxx

  • I feel lucky my MRI is tomorrow as it gets it done quick. Dreading the wait for results. It's so hard to concentrate on anything else isn't it. I wake up feeling tearful and scared. Have you told people yet? Dreading that.

  • Thank you. I will ask the surgeon more about the results when I see her again or the nurse. The surgeon was so lovely. She really wanted to make sure I have a result I am happy with but also did give me options. I am a forward planner so the unknown is very stressful. Trying to keep busy day to day. Sending hugs for you too.

  • Thank you so much.. right back at ya x

  • Just hang in there.. not long to wait! just told family and close friends.. mines 9 days from now.. praying for a good outcome for you Heart️Heart️Heart️