Newly Diagnosed

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Hi - yesterday I was diagnosed with breast cancer. 6cm tumour that has spread to 1 lymph node. I now need a CT scan to see if the cancer has spread. I was prepared for the breast cancer diagnosis and positive that it could be treated but now I am so scared that if it’s spread my outcome could be very different. The waiting for tests is so hard, I can’t sleep or eat and I know that I need to do both to stay well. Anyway be with experience of this, advice or guidance please let me know.

  • Morning Harvestmoon, really hope everything went well for you yesterday x

  • Morning Pepper79, thank you for asking. 

    I now have a provisional plan subject to the results of another MRI (Spine and liver) which the CT scan picked up a couple of possible issues.

    Urgent left mastectomy and lymph node clearance with a worry about reconstruction later, chemo and radiotherapy.  Roughly a years treatment. 

    MRI scan Tuesday and see surgeon on Thursday for results and next steps. 

    Surgery should be done late November or first week December. 

    Wishing you all the best for your journey,  we can continue to compare experiences along the way x

  • That's great news Daisy24.

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  • Hi Pepper79, I certainly am over the moon and so please it has given you a boost hearing it. This is why this forum is so good, as it enables us to get advice and give advice to one another, by sharing our stories. Xx

  • Hi Daisy53, thank you so much, not sure it's sunk in properly yet. How are things going for you at the moment?

  • Things are going good for me thanks.

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  • That's really good to hear, have a lovely weekend xx

  • Hi Pepper79, I’m recently diagnosed with triple negative breast cancer, my tumour is 25mm.  I had an MRI scan as they said they needed to gauge the exact location before considering the best course of treatment, then following these results they said they needed to request a chest, abdomen and pelvic CT scan to check it hasn’t spread, the thought of it spreading is terrifying, but they also said that the CT scan was more of a box ticking exercise.  I had the CT scan this morning and am now waiting for my referral to the oncologists to start chemotherapy, which I will have for 4-6 months before they decide on surgery options.  It is all too much to take in at times. 

  • Hi Lillycat - I know it is a lot to process, I find it worse when I first wake up in the morning when for just a second I forget and then I remember! I am not sure I have said the words out loud yet that I have breast cancer. I had my CT on Friday and should get results by the end of the week. Hoping for clear scans for both of us and anyone else that is waiting for results x

  • Hi Harvestmoon, just checking in.

    How did results of MRI go today? Only share if you want to of course. My CT results, organs clear but two small spots of my lower spine which the nurse said were considered ‘low suspicion’ but because of the lymph node involvement they have now decided to do a bone scan. Now waiting for another scan and nervous about results but clinging onto the ‘low suspicion’ bit!

    After MDT meeting they have also changed the plan and have decided because of the size of my tumour and lymph node involvement we are going for chemo first followed by surgery and then radiotherapy. I think I am ok with that change, it’s seems lots of people’s plans change as more information becomes available and at least the chemo can start killing anything that is spreading from the lymph nodes. 

    has anyone else experienced a bone scan? What is it like?

    thank you for any reassurance of advice anyone can give.