Morning, so I had my first EC chemo treatment on Friday 5th Jan.cold cap was a bit of a shocker! Only for about 15 minutes after that I got used to it. Anyone trying the cold cap I would recommend taking a fabric headband with you to protect your forehead.
The day of chemo wasn’t pleasant I’m not going to lie, I was being sick, slept most of the afternoon and then evening. After the initial day the sickness wore off with the help of anti sickness tablets. Each day since seems to have got better (I’m on day 4 after the first treatment).
I know everyone is different, it kinda threw me a little I wasn’t expecting it to hit me on the day and it to be my worst day, I was expecting to feel it more in the coming days. I’m grateful that the worst day of this cycle is over.
How’s everyone else’s experience been, does it vary with each cycle?
would love to hear other people’s experiences/views
x
thank you rainestorm, so surreal, you expect the absolute worse, and on the days i feel ok, feel a bit of a fraudster, apart from masectomy scar, some days so normal, but from this forum, will do exactly as others, take the good ones with the bad ones - heres to spring 2024 and some sunshine x
You are not a fraudster at all, we have good and bad days, I have fibromyalgia and some days I don't even know it, and other it's like hell has frozen over so yeah, enjoy the good days and then you can have your down days and get wrapped up and cosy xx
Hi,
it definitely is interesting to see the different reactions people have.
i was given a list of the nearest approved traders of nhs for wigs. I will be making an appointment in the next week for a fitting.
I have 3 EC’s in total then move on to have 3 docetaxel’s. My 2nd cycle is on the 26th
Take care everyone
x
Hi W1cky,
My oncologist was brutally honest with me prior to chemotherapy. He informed me that if chemotherapy was delayed, due to infection, or I required dose reduction it did effect its effectiveness. I was fortunate that I had chemo April through to end of July last year, but I was very careful on where I went and who I met up with. All my friends stayed away if they had colds or any sign of illness and I avoided social gatherings. Only time will tell on chemotherapy’s effectiveness but I was fortunate and didn’t have any delays or reduced dosages.
I found docetaxel harder than EC. I had injections to prevent neutropenia and for me they were also difficult. Everyone is different and hopefully you will have fewer symptoms which for me were bone pain and a temperature as my body reacted to the drugs. I am now 5 months post chemo and have a full head of hair and although I’m on Abemaciclib for 2 years I’m getting on with my normal life. Taking one day at a time is the right approach, before you know it chemo will be done. Best wishes for the rest of your treatment.
thank you shade, thats a great insight, and i dont feel so guilty now of keeping ourselves out of the way, amount of people that wanted to drop in, that we did put off, to find out they were ill, so will keep to our time, it is good when the experts are brutally honest, especially when some days you feel ok, maybe not always mentally, but thats another conversation.
the fact its ok to have a good day has made me feel so much better, thank you all
Mine is phesgo (trastuzumab and Pertuzumab) to slow the HER2 fast growing protein,in my thigh and then iv docetaxel, both 6 sessions, rescan after 3 sessions fingers crossed we get good results xx
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