Genomic sequencing for triple negative. Any experience or advice? Thank you

None of the links worked for me, one gave the 404 error, one said page cannot be reached, the last said something about private connection. 

About immunotherapy, as far as I can tell it is now a standard for triple negative and does not depend on genetic testing, since I was offered and received it.

As to what I think, it is that anything any of us can find that may offer additional pathways for treatment and prevention, is good. While oncologists are meant to, and probably do, keep abreast of new research, there is absolutely nothing wrong with bringing to their attention anything we find. Perhaps it was missed somehow, perhaps it is not applicable but then we would want this explained. Early after diagnosis, when I knew the recommended treatment path, I found a research paper from some university in Swizerland regarding one of the drugs that my oncologist had not been aware of. As it happened, this did not affect my treatment, but I was relieved to see that he was open to looking at it. He then pointed out something significant that I'd missed in the research paper, went briefly over a certain corner of it as it applied to me, and with that out of the way I was happy to start treatment. 

Hello, due to high numbers of breast and prostate cancer, amongst others in my immediate and second related family, my oncologist requested genetic testing. Surprisingly, I tested negative but the counsellor did say that there could be something in our family, it's just that science hasn't found it yet. As I understand it, breast, prostate and ovarian cancer can be linked within a family.  Had I been positive, then my siblings and their children could have also been tested, but as I am negative, they won't be tested. However, I was able to let those know who could be affected, to be more aware of the possibilities. I went ahead with a lumpectomy, will be having radiotherapy and am on hormone inhibitors. 

Hello Anabrock

Thank you for your reply. WOW you really did luck out on this! Sorry for my dark humour. This is really interesting. Yes you're so right, they are learning something new all the time. And as you say, it is helpful to know it is not hereditary for your girls.

Take care & enjoy xmas xx

Hello Gazebo Many thanks for your reply, that really is interesting to read. My Dad had prostate cancer, my brother pancreatic so maybe there is a connection? And you're right, science is uncovering something new all the time. It really is incredible. Take care & enjoy xmas, I intend to! xx

Thats a shame the links didn't work. Good to have a receptive oncologist to talk things through.

Take care & enjoy xmas, I intend to! xx

Thanks. We take our victories where we can

I know this is an old thread but was your grandmother with ovarian cancer blood related to the men with prostate cancer? X