just diagnosed and so scared

Former Member
Former Member
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Hello

I've just been diagnosed with invasive ductal cancer grade 3 triple negative I'm so scared is anyone going through the same? 

  • Hey Jayne , just think when you walk out of next chemo it will be over half way to finish line .  Do you have a date for the final one ? Put it on the calendar in bright colours if so and focus on that date xxx

  • Not long until surgery for you , that’s the date of my 2nd chemo.  Did they offer you a choice then , chemo first or surgery .  I didn’t feel like I had an option , they more or less told me they always treat triple negative with chemo first.  They said it was because they needed to know how it would respond to chemo as if they took it out first they would not be able to tell if chemo had an effect on the chemo xxx

  • Awww this conversation making me feel all Christmassy xxx

  • Former Member
    Former Member in reply to Harleybear

    Hi Harleybear yes halfway through it's been a nightmare since 3/6/21 when I found my lump. I will put it on my calendar have a nice meal when I'm over the last one 16/12/21 just hope im ok for Christmas day this disease had taken so much from me its not having Christmas ! How are you today?  

  • Yes chrisstttmasss. I agree Rhiwbina, it's not having my Christmas. Us ladies are going to have fun. xxx

  • Not feeling as sick so that’s a plus . Have a few joint pains , but can live with that .  I’m actually going out tokay with  my  boxer dog and I may even Hoover !! Who’ of thought that just being able to hoover could elicit such excitement xxx

  • Former Member
    Former Member in reply to Shaz52

    Hey Shaz. I have next Tues for op assessment and following Tues after for op 9/11.

    I got some telling off by the surgeon for saying I am scared hahaha...but I am. She told me to use my energy in a more positive way. I think everything is a new experience so comes with apprehension of not knowing! I guess it's a steep learning curve as well. But in saying that I am so relief the surgeon is such a strong and grounded, steady lady! I feel I am in good hands. At times u do need tell the patient off for their own good ...so I get that Laughing I am such hard work really! Hahaha

    When is your next stint? Onwards and upwards.

    Much Heart 

    Claud

  • Former Member
    Former Member in reply to Former Member

    Hi Rhiwbina

    I can empathise with the mind numbing fear and anxiety like I have never known!

    Now it's set 9/11 for surgery, so there is no turning back. Tq for tips re drain bag and comfy bra.

    I am nervous but I will count on my body to heal. It will be uncomfortable but no pain no gain!

    Then I can truly face the next chapter with full solid mental strength and healed body.

    I understand the feeling of not wanting to celebrate anything. I myself could not find joy since post diagnosis and think will I ever be that girl pre diagnosis ever again! Time to embrace the new me I guess

    C x

  • Hi Claud, you are so in good hands. I do need another surgery because there is still an area of pre cancerous cells they could not get clear margins on  my lump all safely removed. So one treatment at a time I am tackling and focused on dealing with chemo the best I can and moving forward after that. I can have my surgery while on herceptin but not chemo. Do you know what chemo you will be having what was your grade her2 and er and pr. My next treatment is the 12th November. Will you be in hospital overnight xxx

  • Former Member
    Former Member in reply to Harleybear

    Hey Harleybear

    I will be thinking of you that morning. All of us giving each other strength! At times when I feel lost  I come here and I am found.

    Have to say I was herded onto chemo but then my mind was so stressed and I had to pull the brakes on chemo first. Then I rang my surgeon in panic! Initially they did say chemo first for the same reason you said. But in my head the spread was just too real. After weighing up all the facts presented I made this choice. And the MDT were happy to support this. Once I know the critter is out then I feel I can face the treatment with less fear. All of us do it differently, there is no right or wrong. 

    Just to think every bout is one step closer to the finish line. I think recording how you feel and tweaking at the start is the challenging part. After that you know the rhythm of you body and know what to expect. Half the battle won is knowing what you're going into for me any way 

    C x